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Diagnostic grouping among adults with intellectual disabilities and autistic spectrum disorders in staffed housing

Felce, David John and Perry, Jonathan 2012. Diagnostic grouping among adults with intellectual disabilities and autistic spectrum disorders in staffed housing. Journal of Intellectual Disability Research 56 (12) , pp. 1187-1193. 10.1111/j.1365-2788.2011.01496.x

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Background There is little evidence to guide the commissioning of residential provision for adults with autistic spectrum disorder (ASD) in the UK. We aim to explore the degree and impact of diagnostic congregation among adults with intellectual disabilities (ID) and ASD living in staffed housing. Methods One hundred and fifty-seven adults with intellectual disabilities from a sample of 424 in staffed housing were assessed as having the triad of impairments characteristic of ASD. They lived in 88 houses: 26 were non-congregate (40% or fewer residents had the triad) and 50 congregate (60% or more had the triad); 12 with intermediate groupings were eliminated. Non-congregate and congregate groups were compared on age, gender, adaptive and challenging behaviour, house size, staff per resident and various measures of quality of care and quality of outcome. Comparisons were repeated for Adaptive Behavior Scale (ABS)-matched, congregate and non-congregate subsamples. Results Non-congregate settings were larger, had lower staff per resident and more individualised social milieus. Groups were similar in age and gender but the non-congregate group had nonsignificantly higher ABS scores.The non-congregate group did more social, community and household activities. After matching for ABS, these outcome differences ceased to be significant. Non-congregate settings were significantly larger and had significantly more organised working methods. Conclusions The findings are consistent with other research that finds few advantages to diagnostic grouping.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
MRC Centre for Neuropsychiatric Genetics and Genomics (CNGG)
Subjects: R Medicine > R Medicine (General)
R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Uncontrolled Keywords: autism; diagnostic grouping; intellectual disability; residential care
Publisher: Blackwell Publishing
ISSN: 0964-2633
Last Modified: 30 Jun 2017 02:23

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