Perspectives of participating in a 12-week exercise programme for people with early -mid stage Huntington's disease

Hamana, Katy, Wasley, David, Riley, Jill, Enright, Stephanie, Collett, Johnny, Dawes, Helen, Quinn, Lori ORCID: https://orcid.org/0000-0002-2982-923X, Rosser, Anne Elizabeth ORCID: https://orcid.org/0000-0002-4716-4753, Busse, Monica, Hunt, Sara, Kelly, Mark, Nemeth, Andrea, Playle, Rebecca Anne ORCID: https://orcid.org/0000-0002-2989-1092 and Simpson, Sharon Anne 2012. Perspectives of participating in a 12-week exercise programme for people with early -mid stage Huntington's disease. Journal of Neurology, Neurosurgery & Psychiatry 83 (S. 1) , A59. 10.1136/jnnp-2012-303524.183

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Abstract

Background: Regular involvement in physical activity is associated with health benefits, but little is known about supporting and encouraging regular exercise for people with Huntington’s Disease (HD). This study aimed to explore experiences and perspectives of people with HD attending a 12 week supported exercise programme delivered in a gym environment 1wk-1 and a home walking programme 2wk-1. Methods Semi-structured interviews conducted (n=9) on completion of the exercise programme focused on the participants’ programme experience. These included areas which explored the relationship between the exercise programme and their condition. Iterative interviewing allowed flexibility to observe new themes. Interviews were transcribed verbatim and transcripts were examined to identify themes. Results Participants reported no adverse exercise effects and perceived various physical and psychological benefits both in terms of their HD and general well being. Participation was enhanced by family support and the presence of an instructor which participants perceived as facilitators of motivation and confidence. However, there were differing perceptions of the gym environment. A key theme of the home programme was its ability to be incorporated into the daily routine. Discussion The exercise programme was positively received and resulted in perceived benefits in physical and psychological function and a good level of adherence. Support, familial or professional, played an important role. The efficacy of a full, part or unsupervised exercise programme remains to be explored.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Medicine Neuroscience and Mental Health Research Institute (NMHRI) Healthcare Sciences MRC Centre for Neuropsychiatric Genetics and Genomics (CNGG)
Subjects:	R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry R Medicine > RZ Other systems of medicine
Funders:	National Institute for Social Care and Health Research, Wales
Last Modified:	25 Oct 2022 09:43
URI:	https://orca.cardiff.ac.uk/id/eprint/59769

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