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Qualitative research: children's perspectives, cerebral palsy

Pickering, Dawn 2015. Qualitative research: children's perspectives, cerebral palsy. Journal of Rehabilitation Medicine 47 (8) , p. 772. 10.2340/16501977-2009

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This presentation will draw upon data from two studies to represent the child with cerebral palsy's voice. Firstly, from a pilot study that explored the effects of adapted cycling, where 35 children kept a diary of their cycling activities and took part in 2 interviews. Interviews were developed utilising a Mosaic approach where a variety of creative methods were applied. Some responded to puppets and used drawings to illustrate what cycling meant to them. The data were analysed using a template approach and 2 researchers reviewed the emergent themes. As this was a mixed methods study, qualitative data added to the statistical findings: the children who cycled, their quadriceps muscles got stronger. Without collecting this additional qualitative perspective, the emotional impact of such a ‘Fun’ recreational activity would have been missed. The children voices would not have been heard without this trustworthy, method. Secondly, 2 case studies will be presented using Interpretative Phenomenological Analysis as an approach to explore what 'Participation' in recreational activities means to them. This data represents 2 females aged 9 and 21 years. This includes data analysis of a digital story, 2 interviews and a 3 month diary. The analysis here utilises a descriptive, conceptual and linguistic dimension. This multi-dimensional view uses metaphors as a means of explaining the child and young person's experiences. A particular metaphor relates to a 'Dragon' being slain as surgery slays 'Spasticity'. The hybridity of childhood cerebral palsy, with its multi-faceted management, is described from a child and young person's perspective. These findings suggest a 'wheel of participation' where the different contexts of 'Participation' can support or hinder the disabled child's inclusion. To provide a choice of recreational activities can promote physical health and emotional well-being outcomes. By hearing the voices of disabled children and young people, healthcare practitioners can fulfil their 'moral imperative' to listen to the disabled child. Other health and social care policy makers can also respond to their voices by considering their physical health and emotional well-being needs. The aim being to enable the child or young person to self-manage their long term health condition into adulthood.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Healthcare Sciences
Subjects: R Medicine > RZ Other systems of medicine
ISSN: 1650-1977
Date of Acceptance: May 2015
Last Modified: 04 Jun 2017 08:23

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