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Childhood Disability: Interpretative Phenomenological Analysis to explore their 'Lifeworld' and views about participation in recreational activities

Pickering, Dawn 2015. Childhood Disability: Interpretative Phenomenological Analysis to explore their 'Lifeworld' and views about participation in recreational activities. Presented at: Association of Paediatric Chartered Physiotherapists Annual Conference 'Tyne to move Forward', Gateshead, November 2015.

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Background ‘Participation’ in health is based upon the World Health Organisation’s International Classification of Functioning ‘involvement in life situations’. However, in Social science literature, participation is based upon children’s rights (UNICEF, 1989). Clark et al (2014) defines participation as the ‘Act of doing and being involved’ where voice and agency play a role in influencing change. Carpenter and McConkey (2012) have suggested it is the healthcare professionals’ ‘moral imperative’ to listen to voices of disabled children. King (2013) suggests a way forward should explore these social aspects of participation including their everyday ‘lived experiences’ or ‘Lifeworld’ which have limited studies in childhood disability (Todres, 2008). Objective: This study explores the ‘Lifeworld’ and views of children and youth with Cerebral Palsy (CP), about what participation in recreational activities means to them. Methodology: Qualitative: 2 Interviews before and after a diary of recreational activities completed over 12 weeks. Participatory ‘Mosaic’ methods were developed using puppetry and ‘sandboxing’. Interpretative Phenomenological Analysis (IPA) was carried out on 2 case studies where descriptive, interpretative and linguistic components were analysed. Results: Emergent themes include enriched perspectives of the emotional impact of living with CP and metaphors to enhance our understanding of their Lifeworld experiences. It is a complex hybridity of factors that influences their experiences. Conclusions / Implications for practice: More data is needed to fully appreciate the Lifeworld of a child or young person with CP, participating in recreational activities, before consideration can be given as to how we might change physiotherapy practice.

Item Type: Conference or Workshop Item (Poster)
Date Type: Completion
Status: Unpublished
Schools: Healthcare Sciences
Subjects: R Medicine > RJ Pediatrics
Date of First Compliant Deposit: 30 March 2016
Last Modified: 06 May 2021 08:35

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