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In/exclusion in the clinic: Down's syndrome, dysmorphology and the ethics of everyday medical work

Thomas, Gareth M. ORCID: and Latimer, Joanna 2015. In/exclusion in the clinic: Down's syndrome, dysmorphology and the ethics of everyday medical work. Sociology 49 (5) , pp. 937-954. 10.1177/0038038515588470

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In this article, we draw on two clinical ethnographies to explore how mundane social practices, affective processes, and cultural materials (re)produce divisions and forms of in/exclusion. By treating everyday life and routines as serious categories of analysis, we identify how power relations are accomplished and how persons/future persons – namely the ‘dysmorphic’ child or the foetus who has or may have Down’s syndrome – are constituted as un/valued or in/excluded. In relation to dysmorphology, we show how the living dysmorphic child is given shelter but future reproductions of such children are enacted negatively and as to be avoided. With reference to Down’s syndrome, we capture how the condition is made absent in the antenatal clinic and constituted as a negative outcome. In sum, we recognise how exploring the micro and everyday reveals who/what is valued and how particular ways of being in the world are threatened, denied, or effaced.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Social Sciences (Includes Criminology and Education)
Centre for Economic and Social Aspects of Genomics (CESAGen)
Subjects: B Philosophy. Psychology. Religion > BJ Ethics
H Social Sciences > H Social Sciences (General)
H Social Sciences > HM Sociology
R Medicine > R Medicine (General)
Uncontrolled Keywords: Bodies, disposal, exclusion, genetics, hospital ethnography, inclusion, motility, power, reproduction, sociologies of everyday life
Additional Information: This article has a correction. Please see related link.
Publisher: SAGE
ISSN: 0038-0385
Funders: Economic and Social Research Council
Related URLs:
Date of First Compliant Deposit: 30 March 2016
Date of Acceptance: 5 May 2015
Last Modified: 07 Nov 2023 04:17

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