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Surgery and me: the experience of surgery as a transition in young adults with inflammatory bowel disease

Allison, Marion 2015. Surgery and me: the experience of surgery as a transition in young adults with inflammatory bowel disease. PhD Thesis, Cardiff University.
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The peak incidence of Inflammatory Bowel Disease is between 15 – 25 years. A significant number of young people whose disease is not controlled by medication undergo surgery. However, the experiences of young adults with Inflammatory Bowel Disease have not been well researched. The aim of this two phase exploratory mixed methods sequential study was to investigate the process of transition in young adults aged 18 – 25 years with Inflammatory Bowel Disease who faced the prospect of, or had undergone, surgery. Schlossberg’s Transition Theory (Goodman et al, 2006) was used to identify the important factors that influenced their experience. Phase1 was qualitative and exploratory and obtained narratives from semi structured interviews with 24 young adults. Phase 2 was a survey. In order to establish whether findings from Phase 1 could be generalised a questionnaire developed from the Phase 1 findings was developed and sent to 158 young adults randomly sampled from seven NHS centres in England,. One hundred and twenty people responded (76%). Key findings from Phase 1 were that preoperatively most young people knew that their disease was out of control. Afterwards they perceived that surgery had improved their physical health and positively changed their lives. The key findings from Phase 2 were that 72 (60%) young people had a positive perception of their surgery. Participants also experienced an improvement in physical health and made a good psychological recovery. The majority of participants (n=106, 84%) received appropriate support and used positive coping strategies such as acceptance and positive reframing. Fear, worry, uncertainty, negative experiences of surgery and body image concerns hindered the process of transition. The specialist Inflammatory Bowel Disease or stoma nurse had a key role in facilitating a positive transition. The study findings will enable health care practitioners to provide appropriate information, care and support for young adult patients with Inflammatory Bowel Disease facing surgery.

Item Type: Thesis (PhD)
Status: Unpublished
Schools: Healthcare Sciences
Subjects: R Medicine > R Medicine (General)
Uncontrolled Keywords: Transition, Surgery, Young Adults, Inflammatory Bowel Disease
Date of First Compliant Deposit: 30 March 2016
Last Modified: 15 Oct 2016 04:39

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