Supporting autistic children’s participation in research studies: A mixed-methods study of familiarising autistic children with a humanoid robot

McGregor, Carly, von dem Hagen, Elisabeth ORCID: https://orcid.org/0000-0003-1056-8196, Wallbridge, Christopher ORCID: https://orcid.org/0000-0001-9468-122X, Dobbs, Jenna, Svenson-Tree, Caitlyn and Jones, Catherine R. G. ORCID: https://orcid.org/0000-0003-0541-0431 2025. Supporting autistic children’s participation in research studies: A mixed-methods study of familiarising autistic children with a humanoid robot. Autism & Developmental Language Impairments

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Abstract

It is important that autism research is inclusive and supports the participation of a wide range of autistic people. However, there has been limited research on how to make studies accessible for autistic participants. This mixed-methods study explored how to promote the comfort of autistic children, using the specific example of visiting a research lab and meeting a humanoid robot. In Phase 1, fourteen parents of autistic children were interviewed about how their child could be made comfortable during a lab visit, including different approaches for familiarising their child with the robot. In Phase 2, autistic children of the parents in Phase 1 (n = 10) visited the lab and completed familiarisation activities with a humanoid robot. The opinions of the children and their parents about the children’s experiences were recorded. Using reflexive thematic analysis, five overarching themes reflected how to best support autistic child participants. These themes encompassed elements of particular relevance to robot studies but also many practices of general relevance to participating in research: (1) Preparation is key, (2) Consideration of environmental factors, (3) Using familiarisation, (4) A supportive and engaged researcher, and (5) Individualised approaches. Based on our findings, we report preliminary and generalisable best-practice recommendations to support autistic children in a research setting and promote positive experiences.

Item Type:	Article
Status:	In Press
Schools:	Schools > Psychology Schools > Computer Science & Informatics
Date of First Compliant Deposit:	20 March 2025
Date of Acceptance:	19 March 2025
Last Modified:	16 Apr 2025 12:00
URI:	https://orca.cardiff.ac.uk/id/eprint/177027

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