Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review

Flynn, S., Vereenooghe, L., Hastings, R., Adams, D., Cooper, S., Gore, N., Hatton, C., Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Jahoda, A., Langdon, A., McNamara, Rachel ORCID: https://orcid.org/0000-0002-7280-1611, Oliver, C., Roy, A., Totsika, V. and Waite, J. 2017. Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review. Clinical Psychology Review 57 , pp. 32-44. 10.1016/j.cpr.2017.08.006

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Abstract

Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n = 41,232) and full-text articles (n = 573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.

Item Type:	Article
Date Type:	Published Online
Status:	Published
Schools:	Medicine
Publisher:	Elsevier
ISSN:	0272-7358
Date of First Compliant Deposit:	23 August 2017
Date of Acceptance:	9 August 2017
Last Modified:	03 May 2023 08:57
URI:	https://orca.cardiff.ac.uk/id/eprint/103681

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