Alhadj Ali, M.  ORCID: https://orcid.org/0000-0002-9780-6443, Bowen-Morris, J., Gee, N. Tze, Stenson, R., Walkey, H., Littlemore, K. and Dayan, C. ORCID: https://orcid.org/0000-0002-6557-3462
2017.
Use of a “YouTube” style video clip to raise interest amongst young people with new‐onset Type 1 diabetes in immunotherapy trials [Abstract].
Diabetic Medicine
34
(S1)
, P315.
10.1111/dme.24_13304
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Abstract
Aims and objectives: Current recruitment strategies of young people with new‐onset Type 1 diabetes into immunointervention trials have been disappointing with < 5% of eligible patients entering trials. Young people frequently receive information through videos from sites such as “YouTube”. We aimed to explore patient's interest in short videos on trials of Type 1 diabetes immunotherapy and develop a prototype for use in the UK. Methods: Barriers to recruitment were explored via a survey of trial sites, patient advice panels and a Patient and Public Involvement event using electronic voting held in collaboration with the JDRF. The feedback was used to design and commission a video for internet release and use in clinics. Results: High proportions of patients and parents reported they would be more likely to take part in research if they could watch a “YouTube” video showing what would happen if they or their child took part (80%), and if they could watch clips of young people talking about their experiences of taking part in research (82.5%). A short video clip (“Get Involved”) of 3:41min was developed based on the feedback which included: patient interviews, young people's voices, computer‐digital graphics of the pathophysiology of Type 1 diabetes. Conclusion: Providing video clips appears to be more relevant to young people helping them to make an informed choice about whether to participate in a clinical trial. An assessment of impact on recruitment is required, and feedback to inform the development of other materials aiming to boost recruitment.
| Item Type: | Article |
|---|---|
| Date Type: | Publication |
| Status: | Published |
| Schools: | Schools > Medicine |
| Additional Information: | Special Issue: Abstracts of the Diabetes UK Professional Conference 2017, Manchester Central, Manchester, 8–10 March 2017. |
| Publisher: | Wiley |
| ISSN: | 0742-3071 |
| Last Modified: | 27 Nov 2022 12:30 |
| URI: | https://orca.cardiff.ac.uk/id/eprint/135862 |
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