Understanding patient perceptions following a psycho-educational intervention for psychogenic non-epileptic seizures

Baxter, Susan, Mayor, Rebecca, Baird, Wendy, Brown, Richard, Cock, Hannah, Howlett, Stephanie, House, Allan, Messina, Josie, Smith, Phil ORCID: https://orcid.org/0000-0003-4250-2562 and Reuber, Markus 2012. Understanding patient perceptions following a psycho-educational intervention for psychogenic non-epileptic seizures. Epilepsy and Behavior 23 (4) , pp. 487-493. 10.1016/j.yebeh.2011.12.002

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Abstract

This study formed part of an evaluation of a brief educational intervention for patients with psychogenic non-epileptic seizures (PNES). The sessions provide information, seizure control techniques and management planning. The qualitative component of the research reported here aimed to provide insight into the participants' perceptions following the intervention. Semi-structured interviews were conducted with twelve patients. Interviews were tape-recorded, transcribed and analyzed, using principles of thematic analysis. Six key themes were identified: getting answers; understanding the link with emotions; seeking a physiological explanation; doubting the diagnosis; the role of medication; and finding a way forward. The findings highlight considerable individual variation in response, with evidence of changed perceptions or enhanced understanding in some patients while others continued to seek answers or explanations about the cause of their seizures. There were no clear links between reported improved understanding or acceptance of the diagnosis and a perceived improvement in the condition.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Medicine
Publisher:	Elsevier
ISSN:	1525-5050
Date of Acceptance:	1 December 2011
Last Modified:	09 Nov 2022 10:19
URI:	https://orca.cardiff.ac.uk/id/eprint/139055

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