Viral- International online peer support & learning in palliative care

Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 2021. Viral- International online peer support & learning in palliative care. Presented at: 17th World Congress of the EAPC, Virtual, 5-8 Oct 2021. Abstracts from the 17th World Congress of the EAPC 2021. Palliative Medicine. , vol.35 (1S) Palliative Medicine: SAGE Publications, 10.1177/02692163211035909

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Abstract

Aims: In Wales, the Advance & Future Care Planning (AFCP) strategic group oversees the national direction for advance care planning. The aim is to establish a peer-supported campaign to effectively inform people about AFCP. The group includes patient representation and has had a strong focus on promoting person-centred AFCP via new media. Methods: Several social media campaigns, for instance #TalkCPR, #FutureCarePlanning & #WhatMattersMost, have been led & co-directed by technology-savvy patients & carers. YouTube videos on the complexities of resuscitation & AFCP education have been co-created by patients. Apps, websites, YouTube channels & hashtags were created including https://advancecareplan.org.uk, www.wales/nhs.uk/DNACPR, #TalkCPR & http://talkcpr.com. Patient groups helped write scripts for explanatory videos. A national conference in 2019 further helped to set direction. Resources have been accessed over a million times, including countries like Lesotho. Results: The online content has had a worldwide reach & highlighted Welsh advance care planning materials. As an example, a patient wrote about the resources on a medical journal site, “Twitter helped me decide that I’m not for resuscitation” in the BMJ ‘What your patient is thinking’ series. The article was downloaded over 10,000 times, with readership breakdown of 61% members of public, 29% practitioners, 8% scientists & 1% journalists.

Item Type:	Conference or Workshop Item (Lecture)
Date Type:	Publication
Status:	Published
Schools:	Medicine
Publisher:	SAGE Publications
ISSN:	0269-2163
Date of First Compliant Deposit:	26 October 2021
Date of Acceptance:	2021
Last Modified:	09 Nov 2023 02:10
URI:	https://orca.cardiff.ac.uk/id/eprint/144521

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