Determiners of social inclusion and exclusion in the dementia context: the perspective of family carers

Wray, Alison ORCID: https://orcid.org/0000-0002-2144-4458 and Bergstrom, Axel 2024. Determiners of social inclusion and exclusion in the dementia context: the perspective of family carers. Pragmatics and Society 15 (1) , pp. 17-32. 10.1075/ps.23051.wra

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Abstract

People living with a dementia and their family carers are at high risk of being excluded from the contact, activities, information and services that help them remain resilient. Using interview data from family dementia carers, this article explores the sources of enablement and inhibition in accessing these aspects of social inclusion. Carers and those living with a dementia are found to inhibit and enable social inclusion for themselves, each other, and other carers. However, carers attribute most agency to the external environment: what is provided and how easy it is to access, along with the attitudes and beliefs of others. Poor communication surfaces as an impediment to social inclusion, with carers often left trying to bridge communicative gaps despite limited knowledge and self-confidence.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	English, Communication and Philosophy
Publisher:	John Benjamins Publishing
ISSN:	1878-9714
Date of First Compliant Deposit:	14 December 2022
Date of Acceptance:	12 December 2022
Last Modified:	06 Mar 2024 14:56
URI:	https://orca.cardiff.ac.uk/id/eprint/154922

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