Improving decision-making for patients in vegetative and minimally conscious states: REF 2021 Impact Case Study

Kitzinger, Jenny ORCID: https://orcid.org/0000-0002-2593-8033 2021. Improving decision-making for patients in vegetative and minimally conscious states: REF 2021 Impact Case Study. Research England.

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Abstract

There are estimated to be up to 64,000 patients maintained in prolonged disorders of consciousness in the UK. Cardiff research identified failures in best interests decision-making for these patients and highlighted the lack of support available for their families. It also showed the unintended negative consequences of the legal requirement to obtain court authorisation for withdrawing life-sustaining treatment. Through an action-research approach, the team created new cultural representations of these conditions; translated research findings into practical support for families and staff; influenced legal changes increasing the emphasis on patients’ own values in treatment decisions (including a landmark Supreme Court judgment); and impacted on new British Medical Association and Royal College of Physicians guidelines.

Item Type:	Other
Status:	Published
Schools:	Journalism, Media and Culture
Subjects:	H Social Sciences > H Social Sciences (General)
Publisher:	Research England
Last Modified:	28 Apr 2023 15:18
URI:	https://orca.cardiff.ac.uk/id/eprint/156101

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