What are the attitudes and perceptions of patients with pulmonary fibrosis and their carers towards use of oxygen therapy? A rapid review

Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda and Byrne, Anthony 2018. What are the attitudes and perceptions of patients with pulmonary fibrosis and their carers towards use of oxygen therapy? A rapid review. [Project Report]. Cardiff: Cardiff University.

Preview

PDF - Accepted Post-Print Version Download (748kB) | Preview

Abstract

Idiopathic Pulmonary Fibrosis (IPF) is a common interstitial lung disease of unknown aetiology, usually occurring between 50-70 years of age. It is a progressive and ultimately fatal disease with a mean survival of less than 3 years from diagnosis. The majority of patients die from respiratory failure and have a high symptom burden. There are no curative treatments and so best supportive care and symptom palliation are mainstays of treatment for all patients. As the disease advances, breathlessness becomes a major determinant of quality of life, and oxygen (O2) desat-uration contributes to exertional intolerance. However, there is limited data on the benefits of O2 use in this patient group and anecdotal evidence suggests some patients are reluctant to instigate it. This can be a barrier to providing high quality supportive care. Given the incidence of IPF of 20-30/100,000 per year, better understanding of patient and carer perceptions of O2 use in this context will have important implications for multidisciplinary practice in Wales in support of a sizable patient population. The purpose of this rapid review is therefore to understand key facilitators and barriers to the use of O2 therapy from the perspective of patients with IPF and their carers.

Item Type:	Monograph (Project Report)
Date Type:	Publication
Status:	Unpublished
Schools:	Academic & Student Support Service Marie Curie Palliative Care Research Centre (MCPCRC) Medicine
Uncontrolled Keywords:	idiopathic pulmonary fibrosis, fibrotic lung disease, oxygen therapy?
Additional Information:	Report uploaded to WCRC PaCERS website: https://walescancerresearchcentre.org/pacers/
Publisher:	Cardiff University
Funders:	Health and Care Research Wales through the Wales Cancer Research Centre
Date of First Compliant Deposit:	20 February 2023
Last Modified:	20 Feb 2023 16:28
URI:	https://orca.cardiff.ac.uk/id/eprint/156136

Actions (repository staff only)

Edit Item