The challenges and experiences of providing end-of-life care in primary care: online survey and semi-structured interviews with UK primary care professionals.

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Price, Delyth and Carson-Stevens, Andrew ORCID: https://orcid.org/0000-0002-7580-7699 2023. The challenges and experiences of providing end-of-life care in primary care: online survey and semi-structured interviews with UK primary care professionals. Presented at: RCGP Annual Conference 2023, Glasgow, 19-20 October 2023. British Journal of General Practice. , vol.73 (Suppl) Royal College of General Practitioners, 10.3399/bjgp23X733833

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Abstract

Background Primary care professionals deliver the majority of end-of-life care to patients. However, extensive pressures and constraints can contribute to variable and substandard care quality. We will report on the preliminary results from an independent evaluation of the ‘Daffodil Standards for Advanced Serious Illness and End-of-Life Care’, created by the Royal College of General Practitioners and Marie Curie. Aim To map activities to improve end-of-life care undertaken by GP practices, including the implementation of the Daffodil Standards. Method An online survey (Phase 1) has been made available to all GP practices in the UK to capture end-of-life care activities, experiences and challenges. Those who have signed up to receive guidance about the Daffodil Standards are also asked about their experiences of implementation and impact. Alongside this, a sub-sample of the survey responders are invited to take part in a semi-structured interview (n=20–26) to identify processes and mechanisms of implementation (Phase 2). This project is informed by the Normalisation Process Theory (NPT). Descriptive statistics (survey) and Framework Analysis (survey, interviews) are used to analyse the data. Results Sixty-eight surveys, of which 41% (n=28/68) had signed up to the Daffodil Standards, and five semi-structured interviews have been completed to date. Recruitment to both the survey and interviews is ongoing. The preliminary results of Phases 1 and 2 will be available for presentation in March 2023. Conclusion The results will be used to inform and refine the design illustrative case studies to capture best available learning and identify exemplars of best practice for later phases of the study.

Item Type:	Conference or Workshop Item (Paper)
Date Type:	Published Online
Status:	Published
Schools:	Healthcare Sciences Marie Curie Palliative Care Research Centre (MCPCRC)
Additional Information:	Abstract
Publisher:	Royal College of General Practitioners
ISSN:	0960-1643
Last Modified:	26 Jul 2023 13:45
URI:	https://orca.cardiff.ac.uk/id/eprint/161258

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