Brimble, Mandy  ORCID: https://orcid.org/0000-0003-3782-0291, Anstey, Sally ORCID: https://orcid.org/0000-0003-2295-3761 and Davies, Jane ORCID: https://orcid.org/0000-0003-0058-8871
2020.
Long-term nurse–parent relationships in paediatric palliative care: a narrative literature review.
Singh Jossal, Satbir, Lapwood, Susie, Maynard, Linda, Langley, Sue, Harris, Nicky and Chambers, Lizzie, eds.
Synopsis: International Digest of Children’s Palliative Care Research Abstract,
Vol. 14.
Bristol:
Together for Short Lives,
p. 7.
|
Abstract
Abstract Background: Paediatric palliative care (PPC) is an active, total approach to the holistic care of the child and family. Close, long-lasting relationships between healthcare professionals and parents in paediatric palliative care enhance quality, provide emotional support and can influence how parents manage their role in the face of uncertainty. Aim: To present a narrative literature review of long-term relationships between children's nurses and parents in PPC settings. Methods: Six databases (CINAHL, PsycINFO, ASSIA, Scopus, Medline and BNI) were searched, identifying 35 articles. A grey literature search produced seven additional relevant items. Findings: Four themes were identified: bonds; attachments and trust; sharing the journey; going the extra mile; and boundaries and integrity. All themes revealed an element of tension between closeness and professionalism. Conclusion: Gaining a greater understanding of how closeness and professionalism are successfully managed by children's palliative care nurses could positively influence pre- and post-registration nurse education.
| Item Type: | Book Section |
|---|---|
| Date Type: | Publication |
| Status: | Published |
| Schools: | Schools > Healthcare Sciences |
| Publisher: | Together for Short Lives |
| Last Modified: | 22 Dec 2025 12:26 |
| URI: | https://orca.cardiff.ac.uk/id/eprint/165035 |
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