'Building our own house' as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production

Williams, Gemma L, Ellis, Rebecca, Holloway, Willow, Caemawr, Selena, Craine, Monique, Williams, Kathryn and Grant, Aimee 2024. 'Building our own house' as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production. Autism 10.1177/13623613241253014

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Abstract

This article describes and reflects on the first six meetings of a newly established Autistic community council, founded to steer a participatory, longitudinal qualitative study investigating the reproductive health of Autistic people with wombs. The two key aims of these initial six meetings – involving four Autistic community leader members and three Autistic researchers – was to (1) guide the start of the project and the development of accessible recruitment materials for the future eight lay members and (2) establish a safe space and a model of accessible communication. We draw on extracts from transcripts made during meetings, member ‘field’ notes and a reflexive co-writing practice to identify the ways in which a sense of safety was built during these first community council meetings. We explore what it means to be an insider-only Community Partnered Participatory Research Council and reflect on the praxis we developed to facilitate Autistic knowledge production.

Item Type:	Article
Date Type:	Published Online
Status:	In Press
Schools:	Social Sciences (Includes Criminology and Education)
Publisher:	SAGE Publications
ISSN:	1362-3613
Date of First Compliant Deposit:	17 May 2024
Date of Acceptance:	18 April 2024
Last Modified:	04 Jun 2024 11:30
URI:	https://orca.cardiff.ac.uk/id/eprint/169006

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