Champions for well-being-who are the key advocates for children and young people with complex disabilities?

Pickering, Dawn ORCID: https://orcid.org/0000-0003-4779-5616 2024. Champions for well-being-who are the key advocates for children and young people with complex disabilities? Presented at: 3rd European Congress of Paediatric Physiotherapists, Zurich, Switzerland, 9-12 October 2024.

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Abstract

This presentation will present doctoral research from non-verbal and non-ambulant children and youth with cerebral palsy, indicating their well-being from their intentional behaviours, photo elicited interviews and diaries. Based upon positioning theory, the children’s stories are portrayed through a kaleidoscope of well-being. This illustrates how their position of where they chose to place themselves, was key to their storylines. The children indicated they could be their own advocates for well-being, supported by people who attuned into their needs, with adapted equipment, to facilitate the activities in different environments. These activities included adapted cycling, frame running, surfing, skiing, musical based events and social activities. As well as the children themselves, people who attuned to non-verbal children and promoted their participation, were seen as advocates for well-being. However, this was not always the case, and their needs were not always considered. Healthcare professionals need to consider if they are signposting to accessible activities and advocating that the non-ambulant and non-verbal children’s needs are considered in new developments.

Item Type:	Conference or Workshop Item (Keynote)
Status:	Unpublished
Schools:	Healthcare Sciences
Subjects:	R Medicine > RJ Pediatrics
Funders:	EUPPT European PhysiotherpayCongress, Chartered Society of Physiotherapy, Baily Thomas Charitable Trust, Association of Paediatric Chartered Physiotherapists
Last Modified:	28 Jan 2025 11:51
URI:	https://orca.cardiff.ac.uk/id/eprint/172230

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