Advance consent for participation in acute stroke trials: a focus group study with people with lived experience of stroke

Udoh, Ubong, Seeger, Rena, Cummings, Emma, Dewar, Brian, Nicholls, Stuart, Fedyk, Mark, Gocan, Sophia, Shepherd, Victoria ORCID: https://orcid.org/0000-0002-7687-0817, Dowlatshahi, Dar and Shamy, Michel 2024. Advance consent for participation in acute stroke trials: a focus group study with people with lived experience of stroke. Canadian Journal of Neurological Sciences 10.1017/cjn.2024.302

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Abstract

Advance consent could address many of the limitations traditional consenting methods pose to participation in acute stroke trials. We conducted a series of five focus groups with people with lived experience of stroke. Using an inductive thematic approach, two themes were developed: factors in favour of, and against, advance consent. Participants supported the idea of advance consent and highlighted trust, transparent communication and sufficient time as major factors that would positively affect their decision to provide advance consent. The results will be used to finalise a model of advance consent suitable for testing the feasibility in stroke prevention clinics.

Item Type:	Article
Date Type:	Published Online
Status:	In Press
Schools:	Medicine Centre for Trials Research (CNTRR)
Publisher:	Cambridge University Press
ISSN:	0317-1671
Date of First Compliant Deposit:	28 October 2024
Last Modified:	28 Oct 2024 09:45
URI:	https://orca.cardiff.ac.uk/id/eprint/173428

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