Shah, Rubina, Finlay, Andrew Y.  ORCID: https://orcid.org/0000-0003-2143-1646, Ali, Faraz Mahmood, Otwombe, Kennedy, Nixon, Stuart J., Ingram, John R. ORCID: https://orcid.org/0000-0002-5257-1142 and Salek, Sam
2025.
HSD33 differential impact of Type 1 and Type 2 diabetes on families: a UK cross-sectional study using FROM-16 [Abstract].
Value in Health
28
(12 S1)
, S380.
10.1016/j.jval.2025.09.1694
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Abstract
Objectives A person's diabetes affects the quality of life (QoL) of family members. However, how the family impact varies across Type 1 (T1D) and Type 2 diabetes mellitus (T2D) was unknown. The study aimed to measure the impact of T1D and T2D on the QoL of family members/partners and assess whether there is any difference in family burden. Methods A cross-sectional study, recruited online through patient support groups: Diabetes UK, Juvenile Diabetes Research Foundation, Healthwise Wales and Social Services Departments Wales. The study involved UK family members/partners of people with diabetes completing the Family Reported Outcome Measure-16 (FROM-16). Results 261 family members/partners (mean age=57.9 years, SD=13.8; females=68.2%) of people with diabetes (mean age=57.7, SD=20.6; females=38.3%; T1D n=100; T2D n=161) completed the FROM-16. The overall FROM-16 mean score was 10.47, SD=7.8, meaning a ‘moderate effect’ on the QoL of family members of people with diabetes. 25% of family members experienced a "very large effect' or 'extremely large effect' on their QoL (FROM-16 score≥17). The family impact of T1D (mean FROM-16=12.61, SD=7.9) was greater than that of T2D (mean FROM-16=9.15, SD=7.5, p<0.01). Being "female" and "parents of children and adolescents" were significant predictors of greater impact. Family members of T2D had a lower risk of experiencing a high family impact (FROM-16 score≥17) compared with T1D (RR: 0.561, 95% CI: 0.371-0.849). Conclusions The family members of people with T1D, particularly those caring for children and adolescents, experience a greater impact on their QoL compared to those with T2D. These findings have clinical and resource implications, indicating a need to assess this impact as a part of routine diabetes care to support impacted family members. The FROM-16 could assess this impact in routine practice and facilitate appropriate support to families.
| Item Type: | Short Communication |
|---|---|
| Date Type: | Publication |
| Status: | Published |
| Schools: | Schools > Medicine |
| Publisher: | Elsevier BV |
| ISSN: | 1098-3015 |
| Last Modified: | 21 Jan 2026 11:00 |
| URI: | https://orca.cardiff.ac.uk/id/eprint/184083 |
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