PP-48 COMBaT: a protocol for developing patient-focused outcomes in routine glioma care [Poster]

Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860, Retzer, A., Powell, J., Burke, R., Rooney, A. G., Lorimer, C., Bulbeck, H., Seddon, K., Puntoni, S., Carson-Stevens, A. ORCID: https://orcid.org/0000-0002-7580-7699, Hopewell-Kelly, N., Devarajan, V. and Byrne, A. 2026. PP-48 COMBaT: a protocol for developing patient-focused outcomes in routine glioma care [Poster]. BMJ Supportive & Palliative Care 16 , A26. 10.1136/spcare-2026-mcrc.59

Full text not available from this repository.

Abstract

Introduction Gliomas account for around 80% of malignant primary brain tumours and are associated with an unpredictable clinical trajectory. People living with glioma experience varying, complex and often unmet care needs. Regularly identifying outcomes that matter most to patients could improve symptom management, treatment provision and quality of life. However, current clinical practice lacks consistent and structured approaches to assess these needs. Aims To develop a core set of patient-focused outcomes reflecting the needs of people living with glioma and to determine a pathway to collect these data in NHS settings. Methods A mixed-methods, multistage study. The qualitative evidence base will be explored, including a systematic review and qualitative synthesis of outcomes used in clinical settings, and secondary qualitative analysis of 19 interviews with people living with glioma. This will inform a draft list of outcomes, refined through a two-round modified Delphi process to achieve consensus on outcome prioritisation among key stakeholders: people living with glioma; healthcare professionals; members of NHS services (including governance and data experts). Patient-reported outcome measures will be reviewed for psychometric properties and mapped to the prioritised outcomes. A final stakeholder workshop will co-develop an implementation strategy for collecting core outcomes in NHS settings. Results This study is in its early stages and is expected to conclude in January 2027. Anticipated outputs include a core outcome set and measures for glioma and an implementation strategy to collect these outcomes in clinical practice within NHS data capture systems, initially focusing on services in Wales. Conclusion Defining core patient-focused outcomes enables meaningful, routine assessment to support patient-centred care and inform future service development across NHS care pathways.

Item Type:	Short Communication
Date Type:	Published Online
Status:	Published
Schools:	Schools > Medicine Research Institutes & Centres > Marie Curie Palliative Care Research Centre (MCPCRC)
Publisher:	BMJ Publishing Group
ISSN:	2045-435X
Last Modified:	23 Mar 2026 09:20
URI:	https://orca.cardiff.ac.uk/id/eprint/185891

Actions (repository staff only)

Edit Item