The experience of living with Type 1 Diabetes and attending clinic from the perception of children, adolescents and carers: Analysis of qualitative data from the DEPICTED study

Lowes, Lesley Madeline ORCID: https://orcid.org/0000-0003-4452-217X, Eddy, Danielle, Channon, Susan Jane ORCID: https://orcid.org/0000-0002-5394-1483, McNamara, Rachel ORCID: https://orcid.org/0000-0002-7280-1611, Robling, Michael Richard ORCID: https://orcid.org/0000-0002-1004-036X and Gregory, John Welbourn ORCID: https://orcid.org/0000-0001-5189-3812 2015. The experience of living with Type 1 Diabetes and attending clinic from the perception of children, adolescents and carers: Analysis of qualitative data from the DEPICTED study. Journal of Pediatric Nursing 30 (1) , pp. 54-62. 10.1016/j.pedn.2014.09.006

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Abstract

Type 1 diabetes (T1D) is a complex, invasive childhood condition. Optimal glycemic control, essential to minimize risk of life-changing complications, is difficult to achieve. The DEPICTED trial evaluated a training program in consultation skills for pediatric diabetes teams. Qualitative descriptive analysis of questionnaire free-text comments from children, adolescents and carers participating in DEPICTED identified the emotional impact of living with T1D and how health professionals' communication skills in clinic influence the patient/carer experience. Healthcare professionals caring for children/adolescents with T1D and carers need training in patient-centered communication skills. Emotional needs of patients/carers need to be systematically assessed and addressed.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Healthcare Sciences Medicine Psychology
Publisher:	Elsevier
ISSN:	0882-5963
Date of Acceptance:	22 September 2014
Last Modified:	14 Nov 2022 08:23
URI:	https://orca.cardiff.ac.uk/id/eprint/68057

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