Palliative care in children in Wales: a study of provision and need

Hain, Richard D. 2005. Palliative care in children in Wales: a study of provision and need. Palliative Medicine 19 (2) , pp. 137-142. 10.1191/0269216305pm967oa

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Abstract

AIM: To establish incidence and prevalence of children needing palliative care in Wales. PATIENTS AND METHODS: Children were identified in three ways: (1) from paediatricians using the Welsh Paediatric Surveillance Unit (WPSU); (2) referrals to the specialist palliative medicine service based in Cardiff; and (3) children under the care of the two principal children's hospices serving Wales. All children referred or reported between January 2001 and December 2002 were included. RESULTS: A total of 226 children were identified. Fifty (22%) were identified by paediatricians, 58 (26%) were referred to the specialist paediatric palliative medicine service, 158 (70%) had been under the care of a children's hospice, and 34 (15%) were identified by more than one source. This study identified approximately 3.75 per 10000 children. This is about half the prevalence figures quoted in the ACT/ RCPCH document in 1997. CONCLUSIONS: The study may underestimate prevalence. Children needing palliative medicine are still under-recognized in Wales. The overlap between children's hospice care and specialist paediatric palliative medicine is relatively small.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Medicine
Subjects:	R Medicine > R Medicine (General) R Medicine > RZ Other systems of medicine
Uncontrolled Keywords:	Child,ChildPreschool,Female,HealthServicesAccessibility*,HealthServicesNeedsandDemand*,HospiceCare/statistics&numericaldata*,Humans,Male,NeedsAssessment,PalliativeCare/statistics&numericaldata*,Questionnaires,Referral and Consultation,Wales
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Publisher:	SAGE Publications
ISSN:	0269-2163
Last Modified:	02 Nov 2015 09:32
URI:	https://orca.cardiff.ac.uk/id/eprint/70551

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