Emphasizing parental choice on newborn screening

Parsons, Evelyn Patricia, Moore, Cynthia Bunnie, Israel, Janet Alice, Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Clarke, Angus John ORCID: https://orcid.org/0000-0002-1200-9286 and Bradley, Don M. 2005. Emphasizing parental choice on newborn screening. British Journal of Midwifery 13 (3) , pp. 165-168.

Full text not available from this repository.

Abstract

This study assessed the implications of changing the protocol for newborn screening for Duchenne muscular dystrophy (DMD) to make choice more explicit. In the intervention group, if screening was requested, a separate card was used. Mothers from both intervention and control groups completed a questionnaire providing data on satisfaction, awareness the test was optional, choice and worry. Overall the intervention did improve satisfaction and awareness that the test was optional with no increase in levels of worry. However, some mothers felt they had been given a choice about screening, but were not aware that the test was optional. There is evidence that even with a rigorous service delivery protocol situations do arise where a decision to screen may not be ‘consented’. This raises important questions about the feasibility of obtaining consent for other newborn screening tests and subsequent storage of DNA.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Medicine Healthcare Sciences
ISSN:	0969-4900
Last Modified:	01 Sep 2023 07:10
URI:	https://orca.cardiff.ac.uk/id/eprint/761

Citation Data

Actions (repository staff only)

Edit Item