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Using patient-reported outcome measures for quality improvement in clinical genetics: an exploratory study

Costal Tirado, Adriana, McDermott, Aoife Mary ORCID:, Thomas, Charlene, Ferrick, Daniel, Harris, Justin, Edwards, Andrea and McAllister, Marion 2017. Using patient-reported outcome measures for quality improvement in clinical genetics: an exploratory study. Journal of Genetic Counseling 26 (5) , pp. 1017-1028. 10.1007/s10897-017-0079-6

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International advocacy of patient-centred healthcare delivery has led to emphasis on the (re)design and evaluation of healthcare processes and outcomes from a patient perspective. Patient-reported outcome measures (PROMs) have significant potential to inform such attempts. However there is limited understanding of the processes by which this can be achieved. This exploratory study followed attempts to utilise two different PROMs measures to support service quality improvement in clinical genetics. PROMs used were the Genetic Counseling Outcome Scale (GCOS-24), a well-validated clinical genetics-specific PROM and Euroqol (EQ-5D), a generic PROM favoured by the UK National Institute for Health and Excellence (NICE). Both of these PROMs enable pre/post intervention comparison. A service audit tool was also used, premised on a patient-reported experience measure. In addition, the study draws on interviews with clinical staff to identify challenges associated with the use of PROMs (response rate, data collection, analysis). Benefits are also explored and include the provision of insight into patients’ needs; complementing clinical judgement; identification of needs being met, evidencing the benefit of services provided; prompting consideration of areas requiring attention; and encouraging professional development.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Business (Including Economics)
Subjects: R Medicine > R Medicine (General)
Uncontrolled Keywords: Patient-reported outcome measures (PROMs) Quality improvement Clinical genetics Exploratory
Publisher: Springer
ISSN: 1573-3599
Funders: Cardiff Business School Seedcorn
Date of First Compliant Deposit: 16 March 2017
Date of Acceptance: 7 February 2017
Last Modified: 06 May 2023 04:37

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