The experiences of children and their parents in paediatric diabetes services should inform the development of communication skills for healthcare staff (the DEPICTED Study)

Hawthorne, Kamila ORCID: https://orcid.org/0000-0001-9765-2926, Bennert, Kristina, Lowes, Lesley Madeline ORCID: https://orcid.org/0000-0003-4452-217X, Channon, Susan Jane ORCID: https://orcid.org/0000-0002-5394-1483, Robling, Michael Richard ORCID: https://orcid.org/0000-0002-1004-036X and Gregory, John Welbourn ORCID: https://orcid.org/0000-0001-5189-3812 2011. The experiences of children and their parents in paediatric diabetes services should inform the development of communication skills for healthcare staff (the DEPICTED Study). Diabetic Medicine 28 (9) , pp. 1103-1108. 10.1111/j.1464-5491.2011.03292.x

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Abstract

Aims: The aims of this study were to describe users’ experience of paediatric diabetes services to inform development of an intervention to improve communication between staff and patients in secondary care within a wider study (the DEPICTED Study). Methods: Methods adapted for paediatric settings were used to set up six audio-recorded focus discussion groups with a total of 32 participants. Transcriptions and notes were coded thematically (supported by NVivo software) and analytic themes developed with discussion between researchers. Results: Three main themes developed: the lack of two-way conversation about glycaemic control in clinic settings; the restricting experience of living with diabetes; and the difficult interactions around diabetes the children had with their schools. Doctors in particular were seen as struggling to link these themes of everyday life in their consultations with children and their parents. Children felt marginalized in clinics, despite active involvement in their own blood glucose management at home. Conclusions: Health professionals need to balance a requirement for good glycaemic control with realism and appreciation of their patients’ efforts. There is a need for a systematic approach to consulting, in particular using agenda setting to ensure that the issues of both the patient and the professional are addressed. A framework for a conceptual approach is discussed. How a patient is involved is as important as what is communicated during a consultation

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Healthcare Sciences Medicine
Subjects:	R Medicine > RA Public aspects of medicine R Medicine > RC Internal medicine R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Uncontrolled Keywords:	children; Patient experience; Qualitative methods; Teenagers; Type 1 diabetes
Publisher:	Wiley Blackwell
ISSN:	0742-3071
Last Modified:	03 Dec 2022 11:00
URI:	https://orca.cardiff.ac.uk/id/eprint/11959

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