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Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol

Islam, Ishrat, Goss, Silvia, Nelson, Annmarie and Byrne, Anthony 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20 , 160940692098213. 10.1177/1609406920982133

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Abstract

Involving High-Grade Glioma Patients and Their Carers in Qualitative Research to Promote Structured Physical Activity: A Mixed-Methods Study Protocol Show less Ishrat Islam, Silvia Goss, Annmarie Nelson, Anthony ByrneFirst Published February 4, 2021 Research Article https://doi.org/10.1177/1609406920982133 Article information Open AccessCreative Commons Attribution, Non Commercial 4.0 License Article Information Volume: 20 Article first published online: February 4, 2021; Issue published: January 1, 2021 Ishrat Islam1, Silvia Goss1, Annmarie Nelson1, Anthony Byrne1, 2 1Marie Curie Palliative Care Research Centre, Cardiff University, United Kingdom 2Palliative Medicine at Cardiff and Vale University Health Board, Cardiff, United Kingdom Corresponding Author: Ishrat Islam, Cardiff University, Neuadd Meirionnydd, Cardiff CF14 4YS United Kingdom. Email: islami@cardiff.ac.uk (primary) or ishratislam@hotmail.com https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). Abstract Introduction: Structured physical activity may improve physical, cognitive, and social functionality, as well as overall quality of life of people with high-grade glioma. Yet, engaging them in such activities remains highly challenging due to their unique disease burden and perceived “loss of control.” A greater understanding of patients’ interests, preferences, behavioral motivations, and perceived barriers around physical activity is needed to design tailored and patient-led physical activity interventions. This protocol describes the method and ethical considerations of a cross-sectional mixed-methods study that has been developed to collect such information from glioma patients and their carers. Methods and analysis: The International Physical Activity Questionnaire (IPAQ 7, short form) and semi-structured interviews will be used for data collection. IPAQ scoring protocol will be followed to examine objective data and Clarke and Braun’s thematic approach will be used to analyze the interview transcripts. Ethics: Ethical approval was obtained from Cardiff University’s Research Ethics Committee and from the regional NHS Research Ethics Committee. The main ethical concerns are to maintain patients’ safety and comfort and ensure that their consent remains informed and valid throughout the recruitment, data collection, management, and dissemination stage. Risks associated with their physical condition, emotional distress, and time commitment should be continuously assessed and necessary actions should be taken accordingly. Conclusion: The protocol will work as a step by step guide for future researchers for developing similar qualitative research and obtaining ethical approval when involving vulnerable individuals like high-grade glioma patients in studies.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Additional Information: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/)
Publisher: SAGE Publications (UK and US): Open Access Titles / SAGE Publishing
ISSN: 1609-4069
Funders: Tenovus Cancer Care
Date of First Compliant Deposit: 12 April 2021
Date of Acceptance: 25 November 2020
Last Modified: 30 Jan 2022 11:38
URI: https://orca.cardiff.ac.uk/id/eprint/140432

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