Browse by Current Cardiff authors

Staffurth, John N. ORCID: https://orcid.org/0000-0002-7834-3172, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Ahmedzai, Sam, Andreyev, H. Jervoise, Campbell, Susan, Farnell, Damian J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Ferguson, Catherine, Green, John, Muls, Ann, O'Shea, Raymond, Pickett, Sara, Smith, Lesley, Taylor, Sophia and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2025. The impact of specialised gastroenterology services for pelvic radiation disease (PRD): Results from the prospective multi-centre EAGLE study. PLoS ONE 20 (1) , e0303356. 10.1371/journal.pone.0303356

Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Retzer, Ameeta, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Katthy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Calvert, Melanie and Byrne, Anthony 2025. Wellbeing and coping: Key aspects of unmet need of people living with glioma. Neuro Oncology Practice , npae127. 10.1093/nop/npae127

Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Bridges, Sarah ORCID: https://orcid.org/0000-0002-7665-5770, Nixon, Lisette Sheena ORCID: https://orcid.org/0000-0002-1270-6970, Hawkins, Maria, Crosby, Tom and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2024. The experiences of patients with oesophageal cancer receiving chemoradiotherapy treatment: a qualitative study embedded in the SCOPE2 trial. BMJ Open 14 (9) , e076394. 10.1136/bmjopen-2023-076394

Smith, Pamela, Quinn-Scoggins, Harriet ORCID: https://orcid.org/0000-0002-6136-070X, Murray, Rachael Ll, McCutchan, Grace ORCID: https://orcid.org/0000-0002-8079-2540, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Moore, Graham ORCID: https://orcid.org/0000-0002-6136-3978, Callister, Matthew, Tong, Hoang and Brain, Kate ORCID: https://orcid.org/0000-0001-9296-9748 2024. Barriers and facilitators to engaging in smoking cessation support among lung screening participants. Nicotine & Tobacco Research 26 (7) , pp. 870-877. 10.1093/ntr/ntad245

Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Buckle, Peter, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2024. 175 Understanding how shared decision-making approaches and patient aids influence patients with advanced cancer when deciding on palliative treatments and care: a realist review. Presented at: ISDM Conference, Lausanne, Switzerland, 7-10 July 2024. BMJ Evidence-Based Medicine. , vol.29 BMJ Publishing Group, A80-A81. 10.1136/bmjebm-2024-SDC.174

Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Lester, Jason, Radley, Lesley, Jones, David, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213 2024. Chemotherapy decision-making in advanced lung cancer: a prospective qualitative study. BMJ Supportive & Palliative Care 14 (1) , e758-e764. 10.1136/bmjspcare-2020-002395

Retzer, Ameeta, Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Scott, Hannah, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Kearns, Pamela, Rivera, Samantha Cruz, Dirven, Linda, Calvert, Melanie and Byrne, Anthony 2023. Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study. Neuro-Oncology Advances 5 (1) , vdad096. 10.1093/noajnl/vdad096

Bravington, Alison, Obita, George, Baddeley, Elin, Johnson, Miriam J., Murtagh, Fliss E. M., Currow, David C., Boland, Elaine G., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Seddon, Kathy, Oliver, Alfred, Noble, Simon I. R. ORCID: https://orcid.org/0000-0001-5425-2383 and Boland, Jason W. 2023. Development of a Core Outcome Set for the research and assessment of inoperable malignant bowel obstruction. PLoS ONE 18 (8) , e0289501. 10.1371/journal.pone.0289501

Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Mann, Mala, Seddon, Kathy, Buckle, Peter, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2023. Understanding how shared decision‐making approaches and patient aids influence patients with advanced cancer when deciding on palliative treatments and care: A realist review. Health Expectations 10.1111/hex.13822

Fiddimore, Emma, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2023. 'I don't want to hear statistics, I want real life stories': systematic review and thematic synthesis of patient and caregiver experiences of Proton Beam Therapy. Journal of Psychosocial Oncology 41 (4) , pp. 434-456. 10.1080/07347332.2022.2136997

Lewis, Heledd, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2023. A mixed methods exploration of oncology and palliative care healthcare professionals experience of virtual consultations. Presented at: 18th EAPC World Congress, De Doelen, Rotterdam, the Netherlands, 15-17 June 2023. Palliative Medicine. , vol.37 (1 Supp) EAPC Abstract Book: SAGE Publications, p. 244. 10.1177/02692163231172891_244

Lewis, Heledd, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2023. 115: Virtual consultations: The experience of oncology and palliative care healthcare professionals ‘One size doesn’t fit all’. Presented at: Palliative Care Congress 2023, Edinburgh International Conference Centre, Scotland, 16-17 March 2023. BMJ Supportive & Palliative Care. , vol.13 10.1136/spcare-2023-PCC.135

Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Mann, Mala, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2023. A rapid realist review: how shared decision-making approaches and patient aids influence treatment decisions for patients with advanced (non-curative) cancer? Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. 10.1136/spcare-2023-MCRC.25

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy E. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 BMJ Publishing Group, A6. 10.1136/spcare-2023-MCRC.14

Mazzaschi, Francesca, Barawi, Kali, Torren-Burton, Anna, Sutton, Eileen, Wakefield, Donna, Gilbert, Emma, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A%. 10.1136/spcare-2023-MCRC.11

Clare, White, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Swan, Flavia, Watson, Max, Allgar, Victoria, Eoin, Napier, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Johnson, Miriam 2022. Hospice inpatient deep vein thrombosis detection (HIDDen) in advanced non-malignant diseases: a longitudinal pilot study. BMJ Supportive and Palliative Care 12 (e6) , e767-e770. 10.1136/bmjspcare-2019-002039

Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Fitzgibbon, Jim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 10.54210/bj.2022.1078

Bravington, Alison, Obita, George, Baddeley, Elin, Johnson, Miriam J., Murtagh, Fliss E M., Currow, David C., Boland, Elaine G., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Seddon, Kathy, Oliver, Alfred, Noble, Simon I. R. ORCID: https://orcid.org/0000-0001-5425-2383 and Boland, Jason W. 2022. The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: a systematic review. Palliative Medicine 36 (9) , pp. 1336-1350. 10.1177/02692163221122352

Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference, Prague, Czech Republic, 19-22 October 2022.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, Lucy 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 , 177. 10.1186/s12904-022-01066-4

Baddeley, E., Retzer, A., Seddon, K., Bulbeck, H., Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, M., Grants, R., Adams, R., Watts, C., Aiyegbusi, O.L., Rivera, S.C., Kearns, P., Dirven, L. and Byrne, A. 2022. The experiences of people with glioma and their caregivers: Living with uncertainty and long-term consequences (COBra Study). Presented at: 17th World Congress of the EAPC 2021, Online, 6-8 October 2021. Neuro-Oncology. , vol.24 (Supp.4) Oxford University Press, iv2. 10.1093/neuonc/noac200.007

Retzer, Ameeta, Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Bulbeck, Helen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, Melanie, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Cruz Rivera, Samantha, Kearns, Pamela, Dirven, Linda and Byrne, Anthony 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data. Presented at: BNOS 2022, Liverpool, 22-24 June 2022. Neuro-Oncology. , vol.24 Oxford University Press, 10.1093/neuonc/noac200.019

Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Scott, Hannah, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Kearns, Pamela, Rivera, Samantha Cruz, Dirven, Linda, Baddeley, Elin, Calver, Melani and Byrne, Anthony 2022. Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study. BMJ Open 12 , 057712. 10.1136/bmjopen-2021-057712

Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study. Presented at: European Association of Neuro-Oncology (EANO), Vienna, Austria, 15-18 September 2022. Neuro-Oncology. , vol.24 (2) Oxford Academic, ii47. 10.1093/neuonc/noac174.162

Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, E., Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Farnell, Damian J. ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Phillips, R., Selman, L. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, 10.1177/02692163221093145

Baddeley, Elin, Mann, Mala, Bravington, Alison, Johnson, Miriam J., Currow, David, Murtagh, Fliss E.M., Boland, Elaine G., Obita, George, Oliver, Alfred, Seddon, Kathy, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Boland, Jason W. and Noble, Simon I.R. ORCID: https://orcid.org/0000-0001-5425-2383 2022. Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliative Medicine 36 (6) , pp. 895-911. 10.1177/02692163221081331

Newman, Alisha ORCID: https://orcid.org/0000-0003-0401-1412, Seddon, Kathy, Hepburn, Julie, McAlister, Bob, Peddle, Sarah, Cleary, Kate and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2022. Developing tools to plan and track patient and public involvement (PPI) impact in research. Presented at: National PROMs Annual Research Conference., Online, 14-15 June 2022.

Escritt, Kate, Mann, Mala, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Hope and meaning-making in phase-one oncology trials: A systematic review and thematic synthesis of qualitative evidence on patient-participant experiences. Trials 23 , 409. 10.1186/s13063-022-06306-9

Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, E., Farnell, D. J., Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, L 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Graham-Wisener, L, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173, Harrison, C, Geddis, J and Berry, E 2022. Understanding public attitudes to death talk and advance care planning in Northern Ireland using health behaviour change theory: a qualitative study. BMC Public Health 22 (906) 10.1186/s12889-022-13319-1

Seddon, Kathy, Elliott, Jim, Johnson, Miriam, White, Clare, Watson, Max, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 2022. Using the United Kingdom standards for public involvement to evaluate the impact of public involvement in a multinational clinical study. Research Involvement and Engagement 7 (1) , 22. 10.1186/s40900-021-00264-3

Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, Eileen, Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Carduff, Emma, Farnell, Damian JJ ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Phillips, Rhiannon, Selman, Lucy E and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp. 1-17. 10.1177/26323524221092456

Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Tod, Angela, Neal, Richard and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2022. Maximising recruitment of research participants into a general practice based randomised controlled trial concerning lung diagnosis—staff insights from an embedded qualitative study. Trials 23 , 225. 10.1186/s13063-022-06125-y

Sutton, Eileen, Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Selman, Lucy 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. British Medical Journal. , vol.12 BMJ Publishing Group,

Mazzaschi, Francesca, Peddle, Sarah, Seddon, Katherine, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2022. 53 Incorporation and evaluation of the patient and public involvement national standards within doctoral research focussed on the improvement of quality of life of patients with high-grade glioma. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A22. 10.1136/spcare-2021-MCRC.53

Byrne, Anthony, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moraes, Fabio Ynoe, Bulbeck, Helen, Bernstein, Mark, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Fielding, Helen 2022. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers pub2. Cochrane Library 2022 (1) , CD013440.. 10.1002/14651858.CD013440.pub2

Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Bulbeck, Helen, Retzer, Ameeta, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, Mia, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Rivera, Samantha Cruz, Kearns, Pamela, Dirven, Linda and Byrne, Anthony 2022. Evaluation of patient and public involvement in the development of a patient reported outcome set in brain tumour trials (COBra Study). Presented at: National PROMs Annual Research Conference, National, 14-15 June 2022.

Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 SAGE Publications, 10.1177/02692163221093145

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.

Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023, Goss, S., Farnell, D. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, A., Barawi, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425, Seddon, K., Machin, L., Sutton, E., Roulston, A., Finucane, A., Penny, A., Smith, K.V., Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860 and Selman, S.E. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10) , pp. 1985-1997. 10.1177/02692163211043372

Mazzaschi, Francesca, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Brain, Katherine ORCID: https://orcid.org/0000-0001-9296-9748, Powell, James and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2021. Everyday memory and processing alteration in patients with high-grade glioma after radiotherapy: a mixed method, public survey. Presented at: 17th World Congress of the European Association for Palliative Care (EAPC 2021), Virtual, 06-08 October 2021. Palliative Medicine. , vol.35 (Supple) SAGE Publications, pp. 76-77. 10.1177/02692163211035909

Baddeley, Elin, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Newman, Alisha, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Pease, Nikki, Nelson, Rosie and Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 2021. A mixed-methods study to evaluate a patient-designed tool to reduce harm from cancer-associated thrombosis: The EMPOWER study. Research and Practice in Thrombosis and Haemostasis 5 (5) , e12545. 10.1002/rth2.12545

Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 and Byrne, Anthony 2021. Before the 2020 Pandemic: an observational study exploring public knowledge, attitudes, plans, and preferences towards death and end of life care in Wales. BMC Palliative Care 20 (1) , 116. 10.1186/s12904-021-00806-2

Adamson, Douglas, Blazeby, Jane, Porter, Catharine ORCID: https://orcid.org/0000-0003-1851-0677, Hurt, Christopher ORCID: https://orcid.org/0000-0003-1206-8355, Griffiths, Gareth, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sewell, Bernadette, Jones, Mari, Svobodova, Martina, Fitzsimmons, Deborah, Nixon, Lisette, Fitzgibbon, Jim, Thomas, Stephen, Millin, Anthony, Crosby, Tom, Staffurth, John and Byrne, Anthony 2021. Palliative radiotherapy combined with stent insertion to reduce recurrent dysphagia in oesophageal cancer patients: the ROCS RCT. Health Technology Assessment 25 (31) 10.3310/hta25310

Smith, Pamela, Daniel, Rhian ORCID: https://orcid.org/0000-0001-5649-9320, Murray, Rachael L, Moore, Graham ORCID: https://orcid.org/0000-0002-6136-3978, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Brain, Kate ORCID: https://orcid.org/0000-0001-9296-9748 2021. Psychosocial determinants of quit motivation in older smokers from deprived backgrounds: a cross-sectional survey. BMJ Open 11 (5) , e044815. 10.1136/bmjopen-2020-044815

Adamson, Douglas, Byrne, Anthony, Porter, Catharine ORCID: https://orcid.org/0000-0003-1851-0677, Blazeby, Jane, Griffiths, Gareth, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sewell, Bernadette, Jones, Mari, Svobodova, Martina ORCID: https://orcid.org/0000-0001-7949-4039, Fitzsimmons, Deborah, Nixon, Lisette ORCID: https://orcid.org/0000-0002-1270-6970, Fitzgibbon, Jim, Thomas, Stephen, Millin, Anthony, Crosby, Tom, Staffurth, John ORCID: https://orcid.org/0000-0002-7834-3172 and Hurt, Christopher ORCID: https://orcid.org/0000-0003-1206-8355 2021. Palliative radiotherapy after oesophageal cancer stenting (ROCS): a multicentre, open-label, phase 3 randomised controlled trial. Lancet Gastroenterology and Hepatology 6 (4) , pp. 292-303. 10.1016/S2468-1253(21)00004-2

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Selman, Lucy, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Goss, Silvia, Sutton, Eileen, Seddon, Kathy, Machin, Linda, Penny, Alison, Roulston, Audrey, Carduff, Emma, Finucane, Anne, Smith, Kirsten V, Torrens Burton, Anna, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Mayland, Catriona, Wakefield, Donna, Johnston, Bridget and Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021. BMJ Supportive and Palliative Care. , vol.11 (Supple) BMJ Publishing Group, A3. 10.1136/spcare-2021-PCC.6

Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173, Goss, Silvia, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20 , 160940692098213. 10.1177/1609406920982133

Jayson, G., Carucci, Margherita, Hurt, Christopher ORCID: https://orcid.org/0000-0003-1206-8355, Zhou, Cong, Monaghan, Phillip, Wych, Julie, Irving, Alys, Narasimham, Monica, Morrison, Hilary, Campbell, Sue, Glasspool, Rosalind, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Dive, Caroline, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243 and Clamp, Andrew 2021. VALTIVE1: Validation of Tie2 as a response biomarker for VEGF inhibitors In Ovarian Cancer. Presented at: NCRI Cancer Conference, 2021.

Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Lester, Jason, Jones, David, Radley, Lesley, Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2020. Holistic care: the clinical nurse specialist’s role in advanced lung cancer patients. Palliative Medicine 34 (Supple) , p. 79. 10.1177/0269216320958098

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Ferreira Semedo, Lenira, Fitzgibbon, Jim, Pickett, Sara, Scott, Hannah, Seddon, Kathy, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34 (7) , pp. 871-888. 10.1177/0269216320920533

Byrne, Anthony Thomas, Adamson, Douglas, Porter, Catharine ORCID: https://orcid.org/0000-0003-1851-0677, Blazeby, Jane M., Griffiths, Gareth Owen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sewell, Bernadette, Jones, Mari, Millin, Tony, Staffurth, John ORCID: https://orcid.org/0000-0002-7834-3172, Crosby, Thomas and Hurt, Chris 2020. Radiotherapy after esophageal cancer stenting (ROCS): A pragmatic randomized controlled trial evaluating the role of palliative radiotherapy in maintaining swallow. Journal of Clinical Oncology 38 (15_sup) , 4569. 10.1200/JCO.2020.38.15_suppl.4569

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Pickett, Sara, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19 , 29. 10.1186/s12904-020-0532-4

Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Scott, Jill, Berger, Anne, Schmidt, Karen, Swarnkar, Parinita and Lee, Agnes 2020. Patient experience of living with cancer-associated thrombosis in Canada (PELICANADA). Research and Practice in Thrombosis and Haemostasis 4 (1) , pp. 154-160. 10.1002/rth2.12274

Hendry, Annie, Poolman, Marlise, Roberts, Jessica Louise, Wilkinson, Clare, Hiscock, Julia and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2020. Feasibility and acceptability of carer administered subcutaneous medications in the last days of life: qualitative findings from the CARiAD study. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. Abstracts from the 11th EAPC World Research Congress Online. Palliative Medicine. SAGE Publications, 10.1177/2F0269216320958098

Mann, Mala, Woodward, Amanda, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2019. Palliative Care Evidence Review Service (PaCERS): a knowledge transfer partnership. Health Research Policy and Systems 17 (1) , 100. 10.1186/s12961-019-0504-4

Newman, Alisha ORCID: https://orcid.org/0000-0003-0401-1412, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Edwards, Howell, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Lewis, Mel 2019. An evaluation of the Cardiff and Vale University Health Board weekend and bank holiday specialist palliative care clinical nurse specialist service. [Project Report]. Cardiff: Marie Curie Palliative Care Research Centre.

Smith, Pamela, Poole, Ria ORCID: https://orcid.org/0000-0002-1173-5489, Mann, Mala, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Moore, Graham ORCID: https://orcid.org/0000-0002-6136-3978 and Brain, Katherine ORCID: https://orcid.org/0000-0001-9296-9748 2019. Systematic review of behavioural smoking cessation interventions for older smokers from deprived backgrounds. BMJ Open 9 (11) , e032727. 10.1136/bmjopen-2019-032727

Byrne, Anthony, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moraes, Fabio Ynoe, Bulbeck, Helen, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Bernstein, Mark, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Fielding, Helen 2019. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers. Cochrane Database of Systematic Reviews 2019 (9) , CD013440.. 10.1002/14651858.CD013440

Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Bowyer, Anna, Taylor, Sophia ORCID: https://orcid.org/0000-0002-3116-5647, Thomas, Kristen, Newman, Alisha ORCID: https://orcid.org/0000-0003-0401-1412, Prout, Hayley Christine ORCID: https://orcid.org/0000-0003-0170-7027, Byrne, Anthony, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9 (2) , pp. 219-224. 10.1136/bmjspcare-2015-000889

Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Mann, Mala and Staffurth, John ORCID: https://orcid.org/0000-0002-7834-3172 2019. Methods of assessing late radiotherapy effects on bowel function. Current Opinion in Supportive and Palliative Care 13 (2) , pp. 134-141. 10.1097/SPC.0000000000000422

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley Christine ORCID: https://orcid.org/0000-0003-0170-7027, Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony, Edwards, Michelle, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9 , e14. 10.1136/bmjspcare-2015-000892

Bowyer, Anna Victoria, Finlay, Ilora Gillian, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony, McCarthy, Jacqui, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Snow, Veronica and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2019. Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study. BMJ Supportive & Palliative Care 9 (1) , e17. 10.1136/bmjspcare-2015-000920

White, Clare, Noble, Simon I. R. ORCID: https://orcid.org/0000-0001-5425-2383, Watson, Max, Swan, Flavia, Allgar, Victoria L., Napier, Eoin, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, McAuley, Jayne, Doherty, Jennifer, Lee, Bernadette and Johnson, Miriam J. 2019. Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study. Lancet Haematology 6 (2) , e79-e88. 10.1016/S2352-3026(18)30215-1

Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Lester, Jason, Anagnostou, Despina and Sampson, Catherine 2019. Avoidable harm: making decisions about chemotherapy with advanced lung cancer patients. Presented at: NCRI 2019, Glasgow, UK, 3-5 November 2019.

Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Scott, Hannah, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Fitzgibbon, Jim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Pickett, Sara, Seddon, Kathy, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8 (3) , pp. 380-381. 10.1136/bmjspcare-2018-mariecurie.54

Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Scott, Hannah, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Pickett, Sara, Byrne, Anthony, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8 (3) , 371. 10.1136/bmjspcare-2018-mariecurie.30

Seddon, Kathy, Fitzgibbon, Jim, Harrington, Barbara, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Pickett, Sara, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8 (3) , pp. 374-375. 10.1136/bmjspcare-2018-mariecurie.40

Palmieri, Maria, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Gregory, Clive ORCID: https://orcid.org/0000-0003-4876-3982, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Hepburn, Julie 2018. 56 Rapid review of dissemination strategies and activities as listed in published protocol papers. BMJ Supportive and Palliative Care 8 (3) , pp. 381-382. 10.1136/bmjspcare-2018-mariecurie.56

Mann, Mala, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Woodward, Amanda, Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173 and Byrne, Anthony 2018. Evidence into practice: novel approaches to underpinning evidence-based innovations in care. BMJ Supportive & Palliative Care 8 (3) , 382. 10.1136/bmjspcare-2018-mariecurie.57

Prout, Hayley C. ORCID: https://orcid.org/0000-0003-0170-7027, Barham, Allan, Bongard, Emily, Tudor-Edwards, Rhiannon, Griffiths, Gareth, Hamilton, Willie, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Hood, Kerry ORCID: https://orcid.org/0000-0002-5268-8631, Hurt, Chris N. ORCID: https://orcid.org/0000-0003-1206-8355, Nelson, Rosie ORCID: https://orcid.org/0000-0002-6075-8425, Porter, Catherine ORCID: https://orcid.org/0000-0003-1851-0677, Roberts, Kirsty, Rogers, Trevor, Thomas-Jones, Emma ORCID: https://orcid.org/0000-0001-7716-2786, Tod, Angela, Yeo, Seow Tien, Neal, Richard D. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2018. Patient understanding and acceptability of an early lung cancer diagnosis trial: a qualitative study. Trials 19 , 419. 10.1186/s13063-018-2803-4

Newman, Alisha, Allnatt, Gemma, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2018. Results of a survey of support to adult care homes in Wales: A specialist palliative care provider perspective. [Project Report]. Cardiff: Marie Curie Palliative Care Research Centre.

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Van Godwin, Jordan ORCID: https://orcid.org/0000-0001-5288-6614, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2018. Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care 17 , 60. 10.1186/s12904-018-0314-4

Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2018. What are the models and outcomes of Public and Patient Involvement (PPI) in cancer and palliative care research? A rapid review. [Project Report]. Cardiff: Cardiff University.

Wasley, David, Gale, Nichola ORCID: https://orcid.org/0000-0001-5207-9863, Roberts, Sioned, Backx, Karianne, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, van Deursen, Robert ORCID: https://orcid.org/0000-0002-9461-0111 and Byrne, Anthony 2018. Patients with established cancer cachexia lack the motivation and self-efficacy to undertake regular structured exercise. Psycho-Oncology 27 (2) , pp. 458-464. 10.1002/pon.4512

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Rees, Helen, Harris, Dylan and Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 2018. The challenge pathway: a mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (innovative practice). Dementia 17 (2) , pp. 252-257. 10.1177/1471301217729532

Fitzgibbon, Jim, Cleary, Kate and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2017. Embedding patient and public involvement and engagement in a cancer research centre. Velikova, Galina, Fallowfield, Lesley, Younger, Jane, Board, Ruth E and Selby, Peter, eds. Problem Solving in Patient-Centred and Integrated Cancer Care, United Kingdom: EBN Health,

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Edwards, M, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moore, B and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39 (8) , pp. 1448-1464.

Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Lester, Jason, Byrne, Anthony, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2017. Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study. BMJ Open 7 (7) , e015277. 10.1136/bmjopen-2016-015277

Neal, Richard D., Barham, Allan, Bongard, Emily, Tudor Edwards, Rhiannon, Fitzgibbon, Jim, Griffiths, Gareth, Hamilton, Willie, Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Parker, David, Porter, Cath ORCID: https://orcid.org/0000-0003-1851-0677, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Roberts, Kirsty, Rogers, Trevor, Thomas-Jones, Emma, Tod, Angela, Yeo, Seow Tien and Hurt, Chris N. ORCID: https://orcid.org/0000-0003-1206-8355 2017. Immediate chest X-ray for patients at risk of lung cancer presenting in primary care: randomised controlled feasibility trial. British Journal of Cancer 116 (3) , pp. 293-302. 10.1038/bjc.2016.414

Hills, M., Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2017. Advance care planning for a preferred place of death: Do professionals ask children and young people what they want? Presented at: 8th International Cardiff Conference on Paediatric Palliative Care, Cardiff, 26-28 July 2017.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers. BMC Palliative Care 15 , 92. 10.1186/s12904-016-0165-9

Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Pease, Nikki, Sui, Jessica, Davies, James, Lewis, Sarah, Malik, Usman, Alikhan, Raza, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. Impact of a dedicated cancer-associated thrombosis service on clinical outcomes: a mixed-methods evaluation of a clinical improvement exercise. BMJ Open 6 (11) , e013321. 10.1136/bmjopen-2016-013321

Taylor, S. ORCID: https://orcid.org/0000-0002-3116-5647, Byrne, A., Adams, R. ORCID: https://orcid.org/0000-0003-3915-7243, Turner, J., Hanna, L., Staffurth, J. ORCID: https://orcid.org/0000-0002-7834-3172, Farnell, D. ORCID: https://orcid.org/0000-0003-0662-1927, Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425 and Green, J. 2016. The three-item ALERT-B questionnaire provides a validated screening tool to detect chronic gastrointestinal symptoms after pelvic radiotherapy in cancer survivors. Clinical Oncology 28 (10) , e139-e147. 10.1016/j.clon.2016.06.004

Taylor, Sophia ORCID: https://orcid.org/0000-0002-3116-5647, Weyinmi, Demeyin, Muls, Ann, Ferguson, Catherine, Farnell, Damian J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Cohen, David, Andreyev, Jervoise, Green, John, Smith, Lesley, Ahmedzai, Sam, Pickett, Sara, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Staffurth, John Nicholas ORCID: https://orcid.org/0000-0002-7834-3172 2016. Improving the well-being of men by Evaluating and Addressing the Gastrointestinal Late Effects (EAGLE) of radical treatment for prostate cancer: study protocol for a mixed-method implementation project. British Medical Journal Open 6 (10) , e011773. 10.1136/bmjopen-2016-011773

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moore, Barbara and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17 (1) , 329. 10.1186/s13063-016-1460-8

Font, C., Garcia-Fernandez, T., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027 and Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 2016. Patients' Experiences of LIving with CANcer associated thrOmbosis in Spain (PELICANOS). Thrombosis Research 140 (S1) , S199-S199. 10.1016/S0049-3848(16)30194-3

Taylor, Sophia Emily, Muls, Ann, Andreyev, Jervoise, Green, John, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Smith, Lesely, Ahmedzai, Sam H., Pickett, Sara, Ferguson, Catherine, Fitzsimmons, Deborah, Cambell, Susan, O'Shea, Raymond, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Staffurth, John Nicholas ORCID: https://orcid.org/0000-0002-7834-3172 2016. Late effects of pelvic radiation treatment (EAGLE study) [Abstract]. Journal of Clinical Oncology 34 (3) , p. 159. 10.1200/jco.2016.34.3_suppl.159

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Kelly, John, Griffiths, Gareth, Casbard, Angela C. ORCID: https://orcid.org/0000-0001-6241-3052 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. Why do patients decline surgical trials? Findings from a qualitative interview study embedded in the Cancer Research UK BOLERO trial (Bladder cancer: Open versus Lapararoscopic or RObotic cystectomy). Trials 17 , 35. 10.1186/s13063-016-1173-z

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Godwin, Jordan van, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. [Project Report].

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Hopewell Kelly, Noreen, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Cardiff: Marie Curie Palliative Care Research Centre , Cardiff University School of Medicine.

Sampson, Cathy ORCID: https://orcid.org/0000-0002-5626-9936, Gill, Ben Hope, Harrison, Nicholas Kim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2015. The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): results of a qualitative study. BMC Pulmonary Medicine 15 , 155. 10.1186/s12890-015-0145-5

Noble, Simon I. ORCID: https://orcid.org/0000-0001-5425-2383, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Fitzmaurice, David, Bekkers, Marie-Jet, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Canham, Joanna ORCID: https://orcid.org/0000-0003-3482-0990, Smith, Joanna D. ORCID: https://orcid.org/0000-0003-4234-6686, Casbard, Angela ORCID: https://orcid.org/0000-0001-6241-3052, Cohen, Ander, Cohen, David, Evans, Jessica, Fletcher, Kate, Johnson, Miriam, Maraveyas, Anthony, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027 and Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631 2015. A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALICAT). Health Technology Assessment 19 (83) , pp. 1-94. 10.3310/hta19830

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Lidstone, V., Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609, Thompson, C. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study. BMJ Supportive & Palliative Care 5 (3) , pp. 306-315. 10.1136/bmjspcare-2013-000595

Treweek, Shaun, Altman, Doug G., Bower, Peter, Campbell, Marion, Chalmers, Iain, Cotton, Seonaidh, Craig, Peter, Crosby, David, Davidson, Peter, Devane, Declan, Duley, Lelia, Dunn, Janet, Elbourne, Diana, Farrell, Barbara, Gamble, Carrol, Gillies, Katie, Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Lang, Trudie, Littleford, Roberta, Loudon, Kirsty, McDonald, Alison, McPherson, Gladys, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Norrie, John, Ramsay, Craig, Sandercock, Peter, Shanahan, Daniel R, Summerskill, William, Sydes, Matt, Williamson, Paula and Clarke, Mike 2015. Making randomised trials more efficient: report of the first meeting to discuss the Trial Forge platform. Trials 16 , 261. 10.1186/s13063-015-0776-0

Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 2015. The utility of PEmb-QoL and VEINES-QoL/Sym questionnaires in evaluating quality of life in the cancer associated thrombosis patient. Journal of Thrombosis and Haemostatis 13 (S2) , p. 548. 10.1111/jth.12993

Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Patients experiences of living with cancer associated thrombosis: the PELICAN study [Abstract]. Journal of Thrombosis and Haemostasis 13 (S2) , p. 543. 10.1111/jth.12993

Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Hope-Gill, B, Harrison, N, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2015. Canopy: Care needs of patients with idiopathic pulmonaty fibrosis and their carers. BMJ Supportive & Palliative Care 5 (1) , p. 113. 10.1136/bmjspcare-2014-000838.30

Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Patients' Experiences of LIving with CANcer-associated thrombosis: the PELICAN study. Patient Preference and Adherence 9 , pp. 337-345. 10.2147/PPA.S79373

Watts, Gareth J., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Lester, J. S. and Noble, Simon Ian ORCID: https://orcid.org/0000-0001-5425-2383 2015. Quality of life measures relating to the skin toxicities of tyrosine kinase inhibitor (TKI) use in lung cancer what is in current use in the literature? Lung Cancer 87 (S1) , S33. 10.1016/S0169-5002(15)50083-4

Hopewell-Kelly, Noreen, Fitzgibbon, Jim, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. TACT: What impact does research partner involvement have on the working practices of a cancer clinical trials unit and academic research centre. BMJ Sipportive and Palliative Care 5 , pp. 107-108. 10.1136/bmjspcare-2014-000838.16

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony, Edwards, Michelle, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Hopewell-Kelly, Noreen, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 , 117. 10.1136/bmjspcare-2014-000838.40

Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Bowyer, Anna, Thomas, Kristen, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Taylor, Sophia, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Newman, Alicia and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. The use of social media in a palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 , 120. 10.1136/bmjspcare-2014-000838.47

Best, Sabine, Tate, Theresa, Noble, Bill, Smith, Rhiannon, Tuft, Jennifer, Tracey, N., McCullugh, A., Eley, J., Black, J., Stockton, M., Cheeseley, A., Berry, L., Burton, C., Deschamps, A., Stevens, E., Penny, A., McEnhill, L., McNair, A., Cupid, B., Maseo, B., Chapman, D., McIllfatrick, S., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Van Godwin, Jordan, Candy, Bridgit, Beaumont, N. and Cowan, Katherine 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach to consulting patient, carers and clinicians. Presented at: Marie Curie Annual Palliative Care Research Conference 2015, London, UK, 27 March 2015.

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Noble, S. 2015. Risky recruitment: feasibility of recruiting patients to a cancer associated thrombosis clinical trial - insights from an embedded qualitative study. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10th May 2015. pp. 2307-2312.

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, A., Edwards, M., Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, S., Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.

Smith, R., Best, T., Tate, T, Noble, B., Tuft, J., Eley, J., Black, J., Stockton, M., Cheeseley, A., Berry, L., Loftus, R., Dechamps, A., Stevens, E., Penny, A., McEnhill, L., McNair, A., Cupid, B., Fryett, S., Kerr, A., McIllfatrick, S., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Godwin, Jordan, Candy, B. and Cowan, K. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach consulting patients, carers and clinicians. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.

Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Bowyer, A., Thomas, Kristen, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Taylor, Sophia ORCID: https://orcid.org/0000-0002-3116-5647, Newman, A., Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Utilising data from social media in palliative care research: developing an ethical framework. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.

Hopewell-Kelly, Noreen, Fitzgibbon, Jim, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. TACT: what impact does research partner involvement have on the working practices of a cancer clinical trial unit and academic research Centre. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.

Mitchell, Helen, Noble, Simon Ian Robert ORCID: https://orcid.org/0000-0001-5425-2383, Finlay, Ilora Gillian and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Defining the palliative care patient: its challenges and implications for service delivery. BMJ Supportive & Palliative Care 5 (4) , pp. 46-52. 10.1136/bmjspcare-2012-000220rep

Fitzgibbon, Jim, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Simon, Natalie and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit's model. Patient Preference and Adherence 8 , pp. 1527-1535. 10.2147/PPA.S66734

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Fitzgibbon, Jim, Simon, Natalie, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. Developing meaningful public involvement in a cancer clinical trials unit. Presented at: COMET IV Meeting: Core Outcome Measures in Effectiveness Trials, Rome, Italy, 20-21 November 2014.

Hopewell-Kelly, Noreen, Fitzgibbon, Jim, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. TACT: What impact does user involvement have on the working practices of a clinical trial research centre and academic research centre? Presented at: COMET IV Meeting: Core Outcome Measures in Effectiveness Trials, Rome, 20-21 November 2014.

Adamson, Douglas, Blazeby, Jane, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Hurt, Chris ORCID: https://orcid.org/0000-0003-1206-8355, Nixon, Lisette ORCID: https://orcid.org/0000-0002-1270-6970, Fitzgibbon, Jim, Crosby, Tom, Staffurth, John ORCID: https://orcid.org/0000-0002-7834-3172, Evans, Mim, Hopewell Kelly, Noreen, Cohen, David, Griffiths, Gareth and Byrne, Anthony 2014. Palliative radiotherapy in addition to self-expanding metal stent for improving dysphagia and survival in advanced oesophageal cancer (ROCS: Radiotherapy after Oesophageal Cancer Stenting): study protocol for a randomized controlled trial. Trials 15 , 402. 10.1186/1745-6215-15-402

Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Finlay, Ilora, Byrne, Anthony, Snow, Veronica and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. The practice of palliative care from the perspective of patients and carers. BMJ Supportive and Palliative Care 4 (3) , pp. 291-298. 10.1136/bmjspcare-2013-000551

Prentice, Joanna, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Osborn, Hannah and Noble, Simon Ian Robert ORCID: https://orcid.org/0000-0001-5425-2383 2014. 'Don't blame the middle man': an exploratory qualitative study to explore the experiences of translators breaking bad news. Journal of the Royal Society of Medicine 107 (7) , pp. 271-276. 10.1177/0141076814527275

Noble, Simon, Smith, Joanna D., Baillie, Jessica, Baglin, T., Griffiths, Gareth O., Casbard, Angela, Cohen, Deborah, Fitzmaurice, D., Hood, Kerenza, Rose, P., Cohen, A., Johnson, Miriam, Maraveyas, A., Bell, John, Toone, H. and Nelson, Annmarie 2014. ALICAT: Anticoagulation length in cancer associated thrombosis - a mixed-methods feasibility study. Thrombosis Research 133 (Supp 2) , S220-S220. 10.1016/S0049-3848(14)50032-1

Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Seaman, S. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. Attitudes of cancer associated thrombosis patients to the novel oral anticoagulants: insights from qualitative interviews. Thrombosis Research 133 , S219-S219.

Seaman, Siwan, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Noble, Imon 2014. Cancer-associated thrombosis, low-molecular-weight heparin, and the patient experience: a qualitative study. Patient Preference and Adherence 8 , pp. 453-461. 10.2147/PPA.S58595

Maughan, T.S., Meade, A.M., Adams, R. A. ORCID: https://orcid.org/0000-0003-3915-7243, Richman, S.D., Butler, R., Fisher, D., Wilson, R.H., Jasani, B., Taylor, G.R., Williams, G. ORCID: https://orcid.org/0000-0003-3768-9940, Sampson, J. ORCID: https://orcid.org/0000-0002-2902-2348, Seymour, M.T., Nichols, L.L., Kenny, S.L., Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425, Sampson, C. ORCID: https://orcid.org/0000-0002-5626-9936, Hodgkinson, E., Bridgewater, J.A., Furniss, D.L., Roy, R., Pope, M.J., Pope, J.K., Parmar, M., Quirke, P. and Kaplan, R. 2014. A feasibility study testing four hypotheses with phase II outcomes in advanced colorectal cancer (MRC FOCUS3): A model for randomised controlled trials in the era of personalised medicine? British Journal of Cancer 110 , pp. 2178-2186. 10.1038/bjc.2014.182

Bowyer, Anna, Finlay, Ilora Gillian, Byrne, Anthony, McCarthy, Jackie, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Snow, V. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. After iWantGreatCare: Service user feedback as a means of refining the iWantGreatCare questionnaire [Abstract]. BMJ Supportive & Palliative Care 4 (S1) , A47-A48. 10.1136/bmjspcare-2014-000654.133

Seaman, Siwan, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Noble, Simon Ian Robert ORCID: https://orcid.org/0000-0001-5425-2383 2014. Is long-term low-molecular-weight heparin still acceptable to palliative care patients in the treatment of cancer-associated thrombosis? A qualitative study revisited. BMJ Supportive & Palliative Care 4 , A25. 10.1136/bmjspcare-2014-000654.69

Neal, R. D., Hurt, Chris Nicholas ORCID: https://orcid.org/0000-0003-1206-8355, Roberts, K., Rogers, T., Hamilton, W., Tudor Edwards, R., Tod, A. M., Parker, D., Thomas Jones, E., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Prout, H., Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631 and Griffiths, G. 2014. A feasibility randomised controlled trial looking at the effect on lung cancer diagnosis of giving a chest X-ray to smokers aged over 60 with new chest symptoms – the ELCID trial [Abstract]. Lung Cancer 83 , S81-S82. 10.1016/S0169-5002(14)70220-X

Smith, Joanna D. ORCID: https://orcid.org/0000-0003-4234-6686, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Baglin, Trevor, Griffiths, Gareth O., Casbard, Angela C. ORCID: https://orcid.org/0000-0001-6241-3052, Cohen, David, Fitzmaurice, David A., Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Rose, Peter, Cohen, Alexander T., Johnson, Miriam, Maraveyas, Anthony, Bell, John, Toone, Harold, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Noble, Simon Ian Robert ORCID: https://orcid.org/0000-0001-5425-2383 2014. A feasibility study to inform the design of a randomized controlled trial to identify the most clinically and cost effective Anticoagulation Length with low molecular weight heparin In the treatment of Cancer Associated Thrombosis (ALICAT): study protocol for a mixed-methods study. Trials 15 (1) , 122. 10.1186/1745-6215-15-122

Noble, Simon Ian Robert ORCID: https://orcid.org/0000-0001-5425-2383, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Smith, J., Baglin, T., Griffiths, G., Casbard, Angela C. ORCID: https://orcid.org/0000-0001-6241-3052, Cohen, D., Fitzmaurice, D., Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Rose, P., Cohen, A., Johnson, M., Maraveyas, A., Bell, J., Toone, H. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. Anticoagulation length in cancer associated thrombosis: a mixed-methods feasibility study. Presented at: International Conference on Thrombosis and Hemostasis Issues in Cancer, Bergamo, Italy, 9-11 May 2014.

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Hopewell-Kelly, Noreen, Stephens, K., Byrne, A. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. Engaging minority ethnic communities to improve access to palliative care: Barriers and strategies. Presented at: Marie Curie Annual Palliative Care Research Conference, London, 28 March 2014. BMJ Supportive and Palliative Care. BMJ, 114-(P026). 10.1136/bmjspcare-2014-000653.28

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life. BMC Palliative Care 13 , p. 22. 10.1186/1472-684X-13-22

Lucia, Alejandro, Maddocks, Matthew, Halliday, Vanessa, Chauhan, Alpna, Taylor, Victoria, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Byrne, Anthony, Griffiths, Gareth and Wilcock, Andrew 2013. Neuromuscular electrical stimulation of the quadriceps in patients with non-small cell lung cancer receiving palliative chemotherapy: a randomized phase II study. PLoS ONE 8 (12) , e86059. 10.1371/journal.pone.0086059

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Kelly, John, Neal, David, Dasgupta, Prokar, Basnett, Gillian, Huddart, Robert, Barham, Allan, Thompson, Colin, Casbard, Angela ORCID: https://orcid.org/0000-0001-6241-3052, Jundi, Hala, Griffiths, Gareth and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. ‘Once I knew there was a choice, I wanted to exercise that choice': using qualitative methods to understand why patients decline surgical trials. Trials 14 (S1) , P9 (2013). 10.1186/1745-6215-14-s1-p9

Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Fenlon, Debbie, Morris, Jenny, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Murray, Nick, Wheatley, Duncan, Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Griffiths, Gareth and Barrett-Lee, Peter ORCID: https://orcid.org/0000-0002-6246-7357 2013. QUALZICE: A QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates. Trials 14 (1) , 325. 10.1186/1745-6215-14-325

Lidstone, Victoria, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609, Thompson, Catherine and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Transition in palliative care study day series. BMJ Supportive & Palliative Care 3 (S1) , A48-A49. 10.1136/bmjspcare-2013-000591.131

Hurt, Chris Nicholas ORCID: https://orcid.org/0000-0003-1206-8355, Roberts, Kirsty, Rogers, Trevor K, Griffiths, Gareth O., Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Prout, Hayley Christine ORCID: https://orcid.org/0000-0003-0170-7027, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Fitzgibbon, Jim, Barham, Allan, Thomas-Jones, Emma, Edwards, Rhiannon, Yeo, Seow, Hamilton, William, Tod, Angela and Neal, Richard D 2013. A feasibility study examining the effect on lung cancer diagnosis of offering a chest X-ray to higher-risk patients with chest symptoms: protocol for a randomized controlled trial. Trials 14 (1) , 405. 10.1186/1745-6215-14-405

Byrne, Anthony, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Harrison, Kim, Hope-Gill, Ben, Hubbard, Richard, Griffiths, Gareth and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. A mixed-methods study of the care needs of individuals with idiopathic pulmonary fibrosis and their carers--CaNoPy: a study protocol. BMJ Open 3 (8) , e003537. 10.1136/bmjopen-2013-003537

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Fitzgibbon, J., Simon, N., Griffiths, G. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Supporting lay representatives and researchers: the role of the research partner coordinator at a clinical trials unit and palliative care research centre. Presented at: New Developments in Public Involvement in Research Conference, Exeter; UK, 13 15 November 2013.

Nawaz, S., Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Improving access to palliative care services for minority ethnic communities in Wales. Presented at: All Wales Palliative Care Conference, Powys; UK, 10 - 11 October 2013.

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, 30 May - 2 June 2013. BMJ Supportive and Palliative Care. BMJ, p. 131. 10.1136/bmjspcare-2013-000453b.19

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. An evaluation of an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013.

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care services by minority ethnic groups. Presented at: Marie Curie Annual Palliative Care Research Conference, London, UK, 28 March 2014.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Broadening access; an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: Marie Curie Annual Palliative Care Research Conference, London; UK, 28 March 2014. BMJ Supportive & Palliative Care. BMJ, p. 131. 10.1136/bmjspcare-2013-000453b.20

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Lidstone, Victoria, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609, Thompson, Catherine and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. 012 Improving the transition process for young people with life-limiting conditions. BMJ Supportive and Palliative Care 3 (A5) 10.1136/bmjspcare-2013-000591.12

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Lidstone, Victoria, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Free communication FC 12.1 (oral abstract): Educating adult palliative care teams about the needs of transition age young people. What do they need to know? Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013. European Journal of Palliative Care. suppl. p. 60.

Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Griffiths, Gareth O., Byrne, A., Moore, Bethan, Ahmed, S. and Noble, Simon Ian Robert ORCID: https://orcid.org/0000-0001-5425-2383 2012. 110 Motivations of palliative lung cancer patients to participate in a non-placebo clinical trial (QualFRAG). Lung Cancer 75 (s1) , s36.

Vale, C., Fitzgibbon, Jim, Hanley, B., Muir, D., Murphy, C., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Stephens, R. and Yoing, B. 2012. Public involvement in clinical trials: supplement to the briefing notes for researchers. National Institute for Health Research.

Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2011. Heartsink encounters: a qualitative study of end-of-life care in out-of-hours general practice. Journal of the Royal Society of Medicine Short Reports 2 (9) , 70. 10.1258/shorts.2011.011020

Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2010. Out-of-hours GPs and palliative care-a qualitative study exploring information exchange and communication issues. BMC Palliative Care 9 , 18. 10.1186/1472-684X-9-18

Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2010. 'Oh God, not a Palliative': out-of-hours general practitioners within the domain of palliative care. Palliative Medicine 24 (5) , pp. 501-509. 10.1177/0269216310368580

Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2010. Strangers in the night - Out of hours doctors and palliative care patients. Presented at: The 8th Palliative Care Congress, Palliative Medicine. 24(2):217, 2010., Bournemouth, UK, 10-12 March 2010. Palliative Medicine.

Noble, Simon Ian Robert ORCID: https://orcid.org/0000-0001-5425-2383, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Finlay, Ilora Gillian 2008. Factors influencing hospice thromboprophylaxis policy: a qualitative study. Palliative Medicine 22 (7) , pp. 808-813. 10.1177/0269216308096723

Johnson, H. M. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2008. The acceptability of an information leaflet explaining cardiopulmonary resuscitation policy in the hospice setting: a qualitative study exploring patients' views. Palliative Medicine 22 (5) , pp. 647-652. 10.1177/0269216308088690

Noble, Simon Ian Robert ORCID: https://orcid.org/0000-0001-5425-2383, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Finlay, Ilora Gillian 2008. Challenges faced by palliative care physicians when caring for doctors with advanced cancer. Palliative Medicine 22 (1) , pp. 71-76. 10.1177/0269216307084607