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Number of items: 27.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Barawi, Kali, Mazzaschi, Francesca, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Gilbert, Emma, Wakefield, Donna, Goss, Silvia, Seddon, Kathy, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 and Selman, Lucy E. 2025. “The grief exists in a bubble that the rest of the world doesn't see”: Exploring biographical disruption and meaning-making amongst people bereaved during the Covid-19 pandemic. Social Science and Medicine 384 , 118518. 10.1016/j.socscimed.2025.118518
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Selman, Lucy E., Farnell, Damian J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Goss, Silvia, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Seddon, Kathy, Mayland, Catriona R, Machin, Linda, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2025. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying 91 (2) , pp. 904-931. 10.1177/00302228221144925
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Burton, Lara, Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Selman, Lucy E. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2024. “I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic. BMC Palliative Care 23 (1) , 300. 10.1186/s12904-024-01619-9
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Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Goss, Silvia, Hope, Isabel and Mann, Mala 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Patient Education and Counseling 131 , 108559. 10.1016/j.pec.2024.108559
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Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Goss, Silvia, Hope, Isabel and Mann, Mala 2024. Information and communication needs of people with advanced incurable cancer: a rapid review [Abstract}. Presented at: 13th World Research Congress of the European Association for Palliative Care., Barcelona, Spain, 16-18 May 2024. Published in: Holland-Hart, Daniella, Mann, Mala and Goss, Silvia eds. , vol.38 (1sup) 2.025. 10.1177/02692163241242338

Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Goss, Silvia, Hope, Isabel and Mann, Mala 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Presented at: The Marie Curie Research Conference: Challenging Inequity in Palliative and End of Life Care, Online, 5-9 February 2024. BMJ Supportive & Palliative Care. , vol.14 (A20) UK: BMJ Publishing Group, 10.1136/spcare-2024-MCR.45

Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Goss, Silvia, Hope, Isabel and Mann, Mala 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review. Cardiff: Palliative Care Evidence Review Service. Available at: https://walescancerresearchcentre.org/wp-content/u...
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Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Farnell, Damian J.J. ORCID: https://orcid.org/0000-0003-0662-1927, Seddon, Kathy, Penny, Alison, Machin, Linda, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Selman, Lucy E. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11 , 1215881. 10.3389/fpubh.2023.1215881
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Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy E. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 BMJ Publishing Group, A6. 10.1136/spcare-2023-MCRC.14

Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Griffiths, Lowri, Makuta, Gladys and Byrne, Anthony 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A6-A7. 10.1136/spcare-2023-MCRC.15

Mazzaschi, Francesca, Barawi, Kali, Torren-Burton, Anna, Sutton, Eileen, Wakefield, Donna, Gilbert, Emma, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A%. 10.1136/spcare-2023-MCRC.11

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, Lucy 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 , 177. 10.1186/s12904-022-01066-4
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Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Griffiths, Lowri, Makuta, Gladys and Byrne, Anthony 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. [Project Report]. NHS Wales and Marie Curie Palliative Care Research Centre.
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Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, E., Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Farnell, Damian J. ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Phillips, R., Selman, L. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, 10.1177/02692163221093145

Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, E., Farnell, D. J., Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, L 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, Eileen, Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Carduff, Emma, Farnell, Damian JJ ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Phillips, Rhiannon, Selman, Lucy E and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp. 1-17. 10.1177/26323524221092456
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Selman, L. E., Farnell, D. J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Goss, S., Seddon, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Mayland, C. R., Wakefield, D., Johnston, B., Byrne, A. and Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36 (4) , pp. 717-729.
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Selman, Lucy E., Farnell, Damian J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, Mirella, Goss, Silvia, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Seddon, Kathy, Machin, Linda, Mayland, Catriona R., Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022, Telford, Englad, 24-25 March 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A1. 10.1136/spcare-2022-SCPSC.2
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Sutton, Eileen, Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Selman, Lucy 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. British Medical Journal. , vol.12 BMJ Publishing Group,

Goss, S., Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, E., Farnell, D. J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Penny, A., Nelson, A., Byrne, A., Selman, L. and Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A6-A7. 10.1136/spcare-2021-MCRC.15
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Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, Eileen, Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Carduff, Emma, Farnell, Damian JJ ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annemarie, Byrne, Anthony, Phillips, Rhiannon, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A10-A11. 10.1136/spcare-2021-MCRC.25
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Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 SAGE Publications, 10.1177/02692163221093145

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.

Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023, Goss, S., Farnell, D. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, A., Barawi, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425, Seddon, K., Machin, L., Sutton, E., Roulston, A., Finucane, A., Penny, A., Smith, K.V., Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860 and Selman, S.E. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10) , pp. 1985-1997. 10.1177/02692163211043372
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Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Selman, Lucy, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Goss, Silvia, Sutton, Eileen, Seddon, Kathy, Machin, Linda, Penny, Alison, Roulston, Audrey, Carduff, Emma, Finucane, Anne, Smith, Kirsten V, Torrens Burton, Anna, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Mayland, Catriona, Wakefield, Donna, Johnston, Bridget and Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021. BMJ Supportive and Palliative Care. , vol.11 (Supple) BMJ Publishing Group, A3. 10.1136/spcare-2021-PCC.6
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Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173, Goss, Silvia, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20 , 160940692098213. 10.1177/1609406920982133
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This list was generated on Sun Nov 30 08:17:19 2025 GMT.


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