Disabled children and young people's voices about the well-being effects from their level of participation in recreational activities-comparative case study

Pickering, Dawn ORCID: https://orcid.org/0000-0003-4779-5616 2021. Disabled children and young people's voices about the well-being effects from their level of participation in recreational activities-comparative case study. Presented at: Virtual Physiotherapy conference 2021, Online, 5 - 6 November 2021. Published in: Pickering, Dawn ed.

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Abstract

Purpose: A literature review highlighted a gap in knowledge for non-verbal disabled children with limited mobility. The research question explored how children and young people with cerebral palsy and their parents viewed, experienced, and chose their level of participation in recreational activities, to benefit their well-being. The two aims were to explore 1. the views, experiences and choices for children and young people’s level of participation in recreational activities, including barriers and facilitators. 2.their perceptions of the effect of their level of participation upon children and young people’s emotional well-being. Methods: A qualitative approach was developed using an exploratory comparative case study design using visual methods. There were two groups, a Participatory Group (N=4) and a Limited Participatory Group (N=3). The participants were aged nine to sixteen years and were supported by their parents in the data collection. Each case included two interviews at the beginning and end of twelve weeks, during which time the parents also kept a hand-written diary. Observations were also carried out at one of their usual activities during this time. Photographs were taken by the parent or the researcher, which were used to elicit discussion in the second interview. Positioning theory was applied, which included a triad of their position, social forces, and their own stories. The storylines of the participants were socially constructed from the evidence of the social forces at play, at the activities where they were positioned. Results: Seven cases were analysed using Braun and Clark’s six stages of thematic analysis. Three overall themes were identified from the findings: 1. Participation Enhancers, 2. Champions for disabled children and young people's well-being-self advocacy; 3. Hindrances to participation. Positioning theory has been further adapted to include the non-verbal children’s storylines, represented by a ‘Kaleidoscope of Well-being’. This suggests that well-being can fluctuate in different environments, influenced by the social forces of advocates who promoted their needs, with specialist equipment. Participants also showed they could choose not to participate, to determine their own storylines, showing their own agency. Conclusion(s): Policy makers and designers of equipment and environments should consider how to increase the choices of recreational activities for disabled children. Due to the current COVID restrictions the opportunity to develop digital games where disabled children and young people see themselves affirmed and represented is proposed post doc. There is a need to explore how health and social care professionals perceive the role of advocacy with disabled children and young people, to enhance their participatory opportunities. Impact: The impact of my PhD will develop from publications in both academic journals, parental networks and policy statements. I created a three minute Powtoon for the participants to listen and see what my dissemination plans are https://www.powtoon.com/c/eh8O41X6xP1/0/m . As I teach at a Higher Education institution, I can influence future practitioners to promote the well-being of disabled children and young people. I would welcome the opportunity to contribute to the review of the four pillars of practice and to explore how advocacy is perceived by the physiotherapy profession.

Item Type:	Conference or Workshop Item (Poster)
Status:	Unpublished
Schools:	Healthcare Sciences
Subjects:	R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Funders:	Chartered Society of Physiotherapy Charitable Trust
Date of Acceptance:	2021
Last Modified:	19 Apr 2023 08:24
URI:	https://orca.cardiff.ac.uk/id/eprint/144477

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