The information and communication needs of patients with advanced incurable cancer: a rapid review.

Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Goss, Silvia, Hope, Isabel and Mann, Mala 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Presented at: The Marie Curie Research Conference: Challenging Inequity in Palliative and End of Life Care, Online, 5-9 February 2024. BMJ Supportive & Palliative Care. , vol.14 (A20) UK: BMJ Publishing Group, 10.1136/spcare-2024-MCR.45

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Abstract

Introduction: Patients with advanced incurable cancer and their caregivers are faced with difficult physical, psychological, and practical issues related to symptoms, treatment, dying, and decision making towards their end of life. However, they do not always receive the information they need or want, that is communicated in a way that can support them with these challenges. Aims: This review aims to collate evidence on the most significant information and communication needs of patients with advanced incurable cancer and their caregivers. Methods: This is a rapid review using PACERS methodology, which utilises modified systematic review methods. A search was conducted across several databases (MEDLINE, EMBASE, and PsycINFO on the Ovid platform) to identify qualitative data focused on the perspective of patients and caregivers and published between 2013 and 2023. Study selection was based upon review of the title and abstract by three independent reviewers. The full text was then assessed according to inclusion criteria. Data extraction and critical appraisal was completed by four reviewers. Thematic analysis of the data will be conducted. Results: The search generated 1349 citations, after abstract screening 74 full texts were retrieved with a further 20 removed, resulting in 54 texts for data extraction. The key themes emerging from the data will identify patients’ and caregivers’ preferences for information and how and when this information should be communicated. It will identify barriers and facilitators to communicating, understanding and receiving information, including inequalities. Conclusions: This study will identify current evidence highlighting key communication and information needs as self-reported by patients living with incurable cancer and their caregivers. Impact: This research will provide evidence of what information is required, and how and when it should be communicated to ensure more inclusive approaches by health and care services. The findings will identify potential improvements to policy and practice.

Item Type:	Conference or Workshop Item (Paper)
Date Type:	Published Online
Status:	Published
Schools:	Academic & Student Support Service Medicine
Publisher:	BMJ Publishing Group
ISSN:	2045-435X
Date of First Compliant Deposit:	6 August 2024
Last Modified:	07 Aug 2024 09:20
URI:	https://orca.cardiff.ac.uk/id/eprint/171187

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