Healthcare, lifestyle and well-being apps. Who am I sharing my data with and what for?

Beneito-Montagut, Roser ORCID: https://orcid.org/0000-0001-5967-4307 2016. Healthcare, lifestyle and well-being apps. Who am I sharing my data with and what for? Presented at: 21st National Ethics Councils (NEC) Forum, The Hague, Ministry of Health, Wellbeing and Sports (VWS), 10-11 May 2016.

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Abstract

Today we can find healthcare, lifestyle and well-being applications – for smartphones, tablets, wearable devices - for a plethora of aspects: from monitoring pregnancy to checking on blood pressure. These apps are used in our everyday life and not only in medical settings. They hold the promise of enhancing, managing, predicting and improving our individual health and healthcare services. Anyone with a smartphone can share personal health related data with healthcare services and companies, as well as other organisations and individuals. While people use these applications social media companies harvest, archive and manage huge amounts of data –aka big data. These two issues – people sharing personal data and the harvest of these data – have serious implications for the way in which research on human subjects can be undertaken and for the ethical frameworks that regulate such research. Key concerns are privacy, anonymity and data management. This talk focuses on the ethical implications arising from the everyday life use of healthcare applications and the risks, challenges and threats of big data. It addresses three issues (1) collection, analysis and sharing of personalised social media data; (2) anonymity and (3) privacy in a context where people is encouraged to share their data.

Item Type:	Conference or Workshop Item (Paper)
Status:	Unpublished
Schools:	Social Sciences (Includes Criminology and Education)
Subjects:	H Social Sciences > H Social Sciences (General) H Social Sciences > HM Sociology
Last Modified:	01 Nov 2022 10:24
URI:	https://orca.cardiff.ac.uk/id/eprint/91369

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