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Number of items: 79.

Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Retzer, Ameeta, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Calvert, Melanie and Byrne, Anthony 2025. Wellbeing and coping: Key aspects of unmet need of people living with glioma. Neuro Oncology Practice 12 (3) , pp. 413-425. 10.1093/nop/npae127
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Selman, Lucy E., Farnell, Damian J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Goss, Silvia, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Seddon, Kathy, Mayland, Catriona R, Machin, Linda, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2025. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying 91 (2) , pp. 904-931. 10.1177/00302228221144925
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Poolman, Marlise, Wright, Stella, Hendry, Annie, Goulden, Nia, Holmes, Emily, Byrne, Anthony, Perkins, Paul, Hoare, Zoe, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Hiscock, Julia, Hughes, Dyfrig A, O’Connor, Julie, Foster, Betty, Reymond, Liz, Lewis, Penney, Wee, Bee, Roberts, Rossella, Parkinson, Anne, Roberts, Sian and Wilkinson, Clare 2025. Carer administration of as-needed subcutaneous medication for breakthrough symptoms in people dying at home: the CARiAD feasibility RCT. BMJ Open 15 (6) , e084476. 10.1136/bmjopen-2024-084476
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Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Buckle, Peter, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2024. 175 Understanding how shared decision-making approaches and patient aids influence patients with advanced cancer when deciding on palliative treatments and care: a realist review. Presented at: ISDM Conference, Lausanne, Switzerland, 7-10 July 2024. BMJ Evidence-Based Medicine. , vol.29 BMJ Publishing Group, A80-A81. 10.1136/bmjebm-2024-SDC.174

Harding, Elin, Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265 and Byrne, Anthony 2024. The perceptions of patients, caregivers and generalist healthcare professionals on the role and value of specialist palliative care services: a rapid review. [Project Report]. Cardiff: Palliative Care Evidence Review Service. Available at: https://walescancerresearchcentre.org/pacers/
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Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Lester, Jason, Radley, Lesley, Jones, David, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213 2024. Chemotherapy decision-making in advanced lung cancer: a prospective qualitative study. BMJ Supportive & Palliative Care 14 (1) , e758-e764. 10.1136/bmjspcare-2020-002395
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Doyle, Christopher, Mann, Mala, Byrne, Anthony and Sui, Jessica 2024. Most effective treatment for early haemostasis and preventing re-bleeding in cancer patients with upper GI bleeds? Presented at: 13th World Research Congress of the European Association for Palliative Care, 16-18 May 2024, Barcelona, Spain. Palliative Medicine. , vol.38 (1 (Sup) pp. 1-280. 10.1177/02692163241242338

Mann, Mala, Hamilton, Timothy and Byrne, Anthony 2024. Are holistic needs assessments (HNA) being consistently implemented in adult cancer clinical practice? Presented at: The Marie Curie Research Conference 2024, Online, 5-9 February 2024. BMJ Supportive & Palliative Care. , vol.14 (A26) BMJ Publishing Group, 10.1136/spcare-2024-MCR.60

Retzer, Ameeta, Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Scott, Hannah, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Kearns, Pamela, Rivera, Samantha Cruz, Dirven, Linda, Calvert, Melanie and Byrne, Anthony 2023. Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study. Neuro-Oncology Advances 5 (1) , vdad096. 10.1093/noajnl/vdad096
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Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Farnell, Damian J.J. ORCID: https://orcid.org/0000-0003-0662-1927, Seddon, Kathy, Penny, Alison, Machin, Linda, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Selman, Lucy E. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11 , 1215881. 10.3389/fpubh.2023.1215881
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Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Mann, Mala, Seddon, Kathy, Buckle, Peter, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2023. Understanding how shared decision‐making approaches and patient aids influence patients with advanced cancer when deciding on palliative treatments and care: A realist review. Health Expectations 10.1111/hex.13822
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Gale, Nichola ORCID: https://orcid.org/0000-0001-5207-9863, Hopkinson, Jane ORCID: https://orcid.org/0000-0002-3915-9815, Wasley, David and Byrne, Anthony 2023. The promotion of homebased physical activity for people with lung and cancer cachexia, a qualitative study of healthcare professionals, patients and carers. Journal of Cancer Survivorship 17 , pp. 677-685. 10.1007/s11764-023-01376-3
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Selman, Lucy E., Sutton, Eileen, Medeiros Mirra, Renata, Stone, Tracey, Gilbert, Emma, Rolston, Yancie, Murray, Karl, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, Alison, Mayland, Katrina R., Wakefield, Donna, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. ‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access tobereavement support: Findings from a mixed methods study. Palliative Medicine 37 (4) , pp. 586-601. 10.1177/02692163221133665
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Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Mann, Mala, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2023. A rapid realist review: how shared decision-making approaches and patient aids influence treatment decisions for patients with advanced (non-curative) cancer? Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. 10.1136/spcare-2023-MCRC.25
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Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy E. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 BMJ Publishing Group, A6. 10.1136/spcare-2023-MCRC.14

Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Griffiths, Lowri, Makuta, Gladys and Byrne, Anthony 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A6-A7. 10.1136/spcare-2023-MCRC.15

Mazzaschi, Francesca, Barawi, Kali, Torren-Burton, Anna, Sutton, Eileen, Wakefield, Donna, Gilbert, Emma, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A%. 10.1136/spcare-2023-MCRC.11

Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Fitzgibbon, Jim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 10.54210/bj.2022.1078
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Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference, Prague, Czech Republic, 19-22 October 2022.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, Lucy 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 , 177. 10.1186/s12904-022-01066-4
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Baddeley, E., Retzer, A., Seddon, K., Bulbeck, H., Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, M., Grants, R., Adams, R., Watts, C., Aiyegbusi, O.L., Rivera, S.C., Kearns, P., Dirven, L. and Byrne, A. 2022. The experiences of people with glioma and their caregivers: Living with uncertainty and long-term consequences (COBra Study). Presented at: 17th World Congress of the EAPC 2021, Online, 6-8 October 2021. Neuro-Oncology. , vol.24 (Supp.4) Oxford University Press, iv2. 10.1093/neuonc/noac200.007

Retzer, Ameeta, Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Bulbeck, Helen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, Melanie, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Cruz Rivera, Samantha, Kearns, Pamela, Dirven, Linda and Byrne, Anthony 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data. Presented at: BNOS 2022, Liverpool, 22-24 June 2022. Neuro-Oncology. , vol.24 Oxford University Press, 10.1093/neuonc/noac200.019

Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Scott, Hannah, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Kearns, Pamela, Rivera, Samantha Cruz, Dirven, Linda, Baddeley, Elin, Calver, Melani and Byrne, Anthony 2022. Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study. BMJ Open 12 , 057712. 10.1136/bmjopen-2021-057712
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Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study. Presented at: European Association of Neuro-Oncology (EANO), Vienna, Austria, 15-18 September 2022. Neuro-Oncology. , vol.24 (2) Oxford Academic, ii47. 10.1093/neuonc/noac174.162

Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Griffiths, Lowri, Makuta, Gladys and Byrne, Anthony 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. [Project Report]. NHS Wales and Marie Curie Palliative Care Research Centre.
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Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, E., Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Farnell, Damian J. ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Phillips, R., Selman, L. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, 10.1177/02692163221093145

Hussain, Jamilla, Peters, Tim J., Johnson, Miriam, Byrne, Anthony, Preston, Nancy, Haines, Andrew, Seddon, Kathy and White, Ian R. 2022. Missing data in palliative and end of life care trials. Guidance on how to reduce, handle and report incomplete data. [Technical Report]. Marie Curie Research. Available at: https://www.mariecurie.org.uk/globalassets/media/d...
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Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, E., Farnell, D. J., Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, L 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Graham-Wisener, L, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173, Harrison, C, Geddis, J and Berry, E 2022. Understanding public attitudes to death talk and advance care planning in Northern Ireland using health behaviour change theory: a qualitative study. BMC Public Health 22 (906) 10.1186/s12889-022-13319-1
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Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, Eileen, Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Carduff, Emma, Farnell, Damian JJ ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Phillips, Rhiannon, Selman, Lucy E and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp. 1-17. 10.1177/26323524221092456
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Selman, L. E., Farnell, D. J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Goss, S., Seddon, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Mayland, C. R., Wakefield, D., Johnston, B., Byrne, A. and Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36 (4) , pp. 717-729.
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Selman, Lucy E., Farnell, Damian J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, Mirella, Goss, Silvia, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Seddon, Kathy, Machin, Linda, Mayland, Catriona R., Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022, Telford, Englad, 24-25 March 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A1. 10.1136/spcare-2022-SCPSC.2
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Sutton, Eileen, Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Selman, Lucy 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. British Medical Journal. , vol.12 BMJ Publishing Group,

Hussain, Jamilla A, White, Ian R, Johnson, Miriam J, Byrne, Anthony, Preston, Nancy J, Haines, Andy, Seddon, Kathy and Peters, Tim J 2022. Development of guidelines to reduce, handle and report missing data in palliative care trials: A multi-stakeholder modified nominal group technique. Palliative Medicine 36 (1) , pp. 59-70. 10.1177/02692163211065597
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Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, Eileen, Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Carduff, Emma, Farnell, Damian JJ ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annemarie, Byrne, Anthony, Phillips, Rhiannon, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A10-A11. 10.1136/spcare-2021-MCRC.25
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Goss, S., Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, E., Farnell, D. J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Penny, A., Nelson, A., Byrne, A., Selman, L. and Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A6-A7. 10.1136/spcare-2021-MCRC.15
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Byrne, Anthony, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moraes, Fabio Ynoe, Bulbeck, Helen, Bernstein, Mark, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Fielding, Helen 2022. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers pub2. Cochrane Library 2022 (1) , CD013440.. 10.1002/14651858.CD013440.pub2
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Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 SAGE Publications, 10.1177/02692163221093145

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.

Cordiner, Rhiannon, Mann, Mala, Makuta, Gladys, Stewart, Rosemary and Byrne, Anthony 2021. What outcome domains are considered core to assessing the impact of adult specialist palliative care services in Wales? A rapid review. [Working Paper]. Cardiff: Cardiff University.
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Mazzaschi, Francesca, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Brain, Katherine ORCID: https://orcid.org/0000-0001-9296-9748, Powell, James and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2021. Everyday memory and processing alteration in patients with high-grade glioma after radiotherapy: a mixed method, public survey. Presented at: 17th World Congress of the European Association for Palliative Care (EAPC 2021), Virtual, 06-08 October 2021. Abstracts from the 17th World Congress of the EAPC 2021. Palliative Medicine. , vol.35 (Issue) SAGE Publications, pp. 76-77. 10.1177/02692163211035909

Mann, Mala, Evans, Lowri, Williams, Lucy and Byrne, Anthony 2021. What is the evidence base for early palliative care integrated with acute oncology services in terms of oncology patient reported experience and outcomes, quality of life, and cost effectiveness? A rapid review. [Working Paper]. Cardiff: Cardiff University.
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Cordiner, Rhiannon, Mann, Mala and Byrne, Anthony 2021. Palliative Care Evidence Review Service. What competency frameworks are available to promote a consistent education framework for palliative and end of life care workforce in Wales? A Rapid Evidence Map. [Working Paper]. Cardiff: Cardiff University.
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Pattern, Rosemary, Mann, Mala, Woodward, Amanda, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739 and Byrne, Anthony 2021. What are patient perspectives in atypical and idiopathic Parkinson’s disease of the benefits and timing of ACP and palliative care input? A rapid review. [Working Paper]. Cardiff: Cardiff University.
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Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 and Byrne, Anthony 2021. Before the 2020 Pandemic: an observational study exploring public knowledge, attitudes, plans, and preferences towards death and end of life care in Wales. BMC Palliative Care 20 (1) , 116. 10.1186/s12904-021-00806-2
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Byrne, Anthony, Adamson, Douglas, Porter, Catharine ORCID: https://orcid.org/0000-0003-1851-0677 and Hurt, Christopher ORCID: https://orcid.org/0000-0003-1206-8355 2021. Stent insertion for incurable oesophageal carcinoma: what is the optimal treatment? - authors' reply. The Lancet Gastroenterology & Hepatology 6 (7) , 525. 10.1016/S2468-1253(21)00174-6
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Adamson, Douglas, Byrne, Anthony, Porter, Catharine ORCID: https://orcid.org/0000-0003-1851-0677, Blazeby, Jane, Griffiths, Gareth, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sewell, Bernadette, Jones, Mari, Svobodova, Martina ORCID: https://orcid.org/0000-0001-7949-4039, Fitzsimmons, Deborah, Nixon, Lisette ORCID: https://orcid.org/0000-0002-1270-6970, Fitzgibbon, Jim, Thomas, Stephen, Millin, Anthony, Crosby, Tom, Staffurth, John ORCID: https://orcid.org/0000-0002-7834-3172 and Hurt, Christopher ORCID: https://orcid.org/0000-0003-1206-8355 2021. Palliative radiotherapy after oesophageal cancer stenting (ROCS): a multicentre, open-label, phase 3 randomised controlled trial. Lancet Gastroenterology and Hepatology 6 (4) , pp. 292-303. 10.1016/S2468-1253(21)00004-2
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Prys Thomas, Owain, Mann, Mala, Fielding, Helen, Croft, Rebecca and Byrne, Anthony 2021. What is the evidence base for effectiveness and cost effectiveness of rapid response or enhanced response community palliative care service models? [Working Paper]. Cardiff: Cardiff University.
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Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173, Goss, Silvia, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2021. Involving high-grade glioma patients and their carers in qualitative research to promote structured physical activity: a mixed-methods study protocol. International Journal of Qualitative Methods 20 , 160940692098213. 10.1177/1609406920982133
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Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Lester, Jason, Jones, David, Radley, Lesley, Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2020. Holistic care: the clinical nurse specialist’s role in advanced lung cancer patients. Palliative Medicine 34 (Supple) , p. 79. 10.1177/0269216320958098

Byrne, Anthony Thomas, Adamson, Douglas, Porter, Catharine ORCID: https://orcid.org/0000-0003-1851-0677, Blazeby, Jane M., Griffiths, Gareth Owen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sewell, Bernadette, Jones, Mari, Millin, Tony, Staffurth, John ORCID: https://orcid.org/0000-0002-7834-3172, Crosby, Thomas and Hurt, Chris 2020. Radiotherapy after esophageal cancer stenting (ROCS): A pragmatic randomized controlled trial evaluating the role of palliative radiotherapy in maintaining swallow. Journal of Clinical Oncology 38 (15_sup) , 4569. 10.1200/JCO.2020.38.15_suppl.4569

Chatland, Laura, Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda, Byrne, Anthony and Best, Sabine 2020. What is the evidence base for care models within care homes that improve the end of life for patients and their carers? A rapid review. [Documentation]. Cardiff: Cardiff University.
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Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Pickett, Sara, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19 , 29. 10.1186/s12904-020-0532-4
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Mann, Mala, Woodward, Amanda and Byrne, Anthony 2020. Partnership and collaboration in action: Palliative Care Evidence Review Service. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. Abstracts from the 11th EAPC World Research Congress Online, 7th – 9th October 2020. Palliative Medicine. , vol.34 SAGE Publications, 10.1177/0269216320958098

Mazzaschi, Francesca, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Brain, Katherine, Powell, James and Nelson, Annmarie 2020. What are the cognitive deficits observed in adults with brain cancer after receiving radiotherapy or combined chemo-radiotherapy? Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. Palliative Medicine. , vol.34 SAGE Publications, 10.1177/0269216320958098

Newman, Alisha ORCID: https://orcid.org/0000-0003-0401-1412, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Edwards, Howell, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Lewis, Mel 2019. An evaluation of the Cardiff and Vale University Health Board weekend and bank holiday specialist palliative care clinical nurse specialist service. [Project Report]. Cardiff: Marie Curie Palliative Care Research Centre.
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Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley Christine ORCID: https://orcid.org/0000-0003-0170-7027, Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony, Edwards, Michelle, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9 , e14. 10.1136/bmjspcare-2015-000892
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Davies, James Michael Vernon, Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Evans, Alison and Byrne, Anthony 2019. What is the evidence base for the assessment and management of cancer cachexia in adults with incurable pancreatic cancer? A rapid review. [Documentation]. Cardiff: Cardiff University.
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Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Lester, Jason, Anagnostou, Despina and Sampson, Catherine 2019. Avoidable harm: making decisions about chemotherapy with advanced lung cancer patients. Presented at: NCRI 2019, Glasgow, UK, 3-5 November 2019.

Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Scott, Hannah, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Fitzgibbon, Jim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Pickett, Sara, Seddon, Kathy, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8 (3) , pp. 380-381. 10.1136/bmjspcare-2018-mariecurie.54

Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Scott, Hannah, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Pickett, Sara, Byrne, Anthony, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8 (3) , 371. 10.1136/bmjspcare-2018-mariecurie.30

Mann, Mala, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Woodward, Amanda, Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173 and Byrne, Anthony 2018. Evidence into practice: novel approaches to underpinning evidence-based innovations in care. BMJ Supportive & Palliative Care 8 (3) , 382. 10.1136/bmjspcare-2018-mariecurie.57

Mann, Mala, Woodward, Amanda, Lewis, Mel and Byrne, Anthony 2018. What is the impact and effectiveness of the 7-day CNS service on palliative care patients and their families? A rapid review. [Working Paper]. Cardiff: Cardiff University.
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Newman, Alisha ORCID: https://orcid.org/0000-0003-0401-1412, Allnatt, Gemma, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2018. Results of a survey of support to adult care homes in Wales: A specialist palliative care provider perspective. [Project Report]. Cardiff: Marie Curie Palliative Care Research Centre.
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Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Van Godwin, Jordan ORCID: https://orcid.org/0000-0001-5288-6614, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2018. Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care 17 , 60. 10.1186/s12904-018-0314-4
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Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2018. What are the models and outcomes of Public and Patient Involvement (PPI) in cancer and palliative care research? A rapid review. [Project Report]. Cardiff: Cardiff University.
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Wasley, David, Gale, Nichola ORCID: https://orcid.org/0000-0001-5207-9863, Roberts, Sioned, Backx, Karianne, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, van Deursen, Robert ORCID: https://orcid.org/0000-0002-9461-0111 and Byrne, Anthony 2018. Patients with established cancer cachexia lack the motivation and self-efficacy to undertake regular structured exercise. Psycho-Oncology 27 (2) , pp. 458-464. 10.1002/pon.4512
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Collins, Jemima T., Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Chester, John ORCID: https://orcid.org/0000-0002-7830-3840, Davies, Helen E., Evans, William D. ORCID: https://orcid.org/0000-0003-0013-8205, Farewell, Daniel ORCID: https://orcid.org/0000-0002-8871-1653, Lester, Jason F., Parry, Diane, Pettit, Rebecca and Byrne, Anthony 2018. The value of physical performance measurements alongside assessment of sarcopenia in predicting receipt and completion of planned treatment in non-small cell lung cancer: an observational exploratory study. Supportive Care in Cancer 26 , pp. 119-127. 10.1007/s00520-017-3821-6

Mann, Mala, Woodward, Amanda and Byrne, Anthony 2017. What outpatient models have proven efficacy for assessment and management of pelvic radiotherapy late effects? [Working Paper]. Cardiff: Cardiff University.
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Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Lester, Jason, Byrne, Anthony, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2017. Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study. BMJ Open 7 (7) , e015277. 10.1136/bmjopen-2016-015277
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Svobodova, Martina ORCID: https://orcid.org/0000-0001-7949-4039, Nixon, Lisette Sheena ORCID: https://orcid.org/0000-0002-1270-6970, Blazeby, Jane, Byrne, Anthony and Adamson, Dougal 2017. Optimising trial recruitment with well-designed screening log: experiences from the ROCS study [Abstract]. Trials 18 (S1) , pp. 93-94. 10.1186/s13063-017-1902-y
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Mann, Mala, Gee, Peter, Morris, Andrew, Bayliss, Victoria, Allen, Caroline and Byrne, Anthony 2017. Does advance care planning alter management decisions made by healthcare professionals? [Working Paper]. Cardiff: Cardiff University.
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Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers. BMC Palliative Care 15 , 92. 10.1186/s12904-016-0165-9
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Mann, Mala, Gee, Peter and Byrne, Anthony 2016. What are best practice service models in rural areas for the delivery of end of life and palliative care? A rapid review. [Working Paper]. Cardiff: Cardiff University.
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Fallon, Marie, Hoskin, Peter J., Colvin, Lesley A., Fleetwood-Walker, Susan M., Adamson, Douglas, Byrne, Anthony, Murray, Gordon D. and Laird, Barry J.A. 2016. Randomized double-blind trial of pregabalin versus placebo in conjunction with palliative radiotherapy for cancer-induced bone pain. Journal of Clinical Oncology 34 (6) , pp. 550-556. 10.1200/JCO.2015.63.8221
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Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Godwin, Jordan van, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. [Project Report].
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Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Hopewell Kelly, Noreen, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Cardiff: Marie Curie Palliative Care Research Centre , Cardiff University School of Medicine.
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Lucia, Alejandro, Maddocks, Matthew, Halliday, Vanessa, Chauhan, Alpna, Taylor, Victoria, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Byrne, Anthony, Griffiths, Gareth and Wilcock, Andrew 2013. Neuromuscular electrical stimulation of the quadriceps in patients with non-small cell lung cancer receiving palliative chemotherapy: a randomized phase II study. PLoS ONE 8 (12) , e86059. 10.1371/journal.pone.0086059

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