Browse by Current Cardiff authors

Finucane, Anne, Canny, Anne, Mair, Ally Pax Arcari, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Selman, Lucy E., Swash, Brooke, Wakefield, Donna and Gillanders, David 2024. A rapid review of the evidence for online interventions for bereavement support. Palliative Medicine 10.1177/02692163241285101

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2024. A spotlight on children and young people - and remembering Colin Murray Parkes. Bereavement Journal of Grief and Responses to Death 3 , pp. 1-3. 10.54210/bj.2024.1140

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Farnell, Damian J.J. ORCID: https://orcid.org/0000-0003-0662-1927, Seddon, Kathy, Penny, Alison, Machin, Linda, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Selman, Lucy E. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11 , 1215881. 10.3389/fpubh.2023.1215881

Fiddimore, Emma, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2023. 'I don't want to hear statistics, I want real life stories': systematic review and thematic synthesis of patient and caregiver experiences of Proton Beam Therapy. Journal of Psychosocial Oncology 41 (4) , pp. 434-456. 10.1080/07347332.2022.2136997

Selman, Lucy E., Sutton, Eileen, Medeiros Mirra, Renata, Stone, Tracey, Gilbert, Emma, Rolston, Yancie, Murray, Karl, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, Alison, Mayland, Katrina R., Wakefield, Donna, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. ‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access tobereavement support: Findings from a mixed methods study. Palliative Medicine 37 (4) , pp. 586-601. 10.1177/02692163221133665

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. What difference does a year make? Looking back and ahead in Bereavement-Volume 2. Bereavement: Journal of Grief and Responses to Death 2 10.54210/bj.2023.1116

Mazzaschi, Francesca, Barawi, Kali, Torren-Burton, Anna, Sutton, Eileen, Wakefield, Donna, Gilbert, Emma, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A%. 10.1136/spcare-2023-MCRC.11

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy E. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 BMJ Publishing Group, A6. 10.1136/spcare-2023-MCRC.14

Selman, Lucy E., Farnell, Damian J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Goss, Silvia, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Seddon, Kathy, Mayland, Catriona R, Machin, Linda, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying 10.1177/00302228221144925

Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Fitzgibbon, Jim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 10.54210/bj.2022.1078

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, Lucy 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 , 177. 10.1186/s12904-022-01066-4

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Pearce, Caroline 2022. We wept and we waited - but what can we learn from the week we mourned the Queen? Bereavement : Journal of Grief Responses to Death 1 (2022) , pp. 1-4.

Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, E., Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Farnell, Damian J. ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Phillips, R., Selman, L. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, 10.1177/02692163221093145

Escritt, Kate, Mann, Mala, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Hope and meaning-making in phase-one oncology trials: A systematic review and thematic synthesis of qualitative evidence on patient-participant experiences. Trials 23 , 409. 10.1186/s13063-022-06306-9

Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, E., Farnell, D. J., Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, L 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, Eileen, Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Carduff, Emma, Farnell, Damian JJ ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Phillips, Rhiannon, Selman, Lucy E and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. “It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys. Palliative Care and Social Practice 16 , pp. 1-17. 10.1177/26323524221092456

Selman, L. E., Farnell, D. J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Goss, S., Seddon, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Mayland, C. R., Wakefield, D., Johnston, B., Byrne, A. and Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023 2022. Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 36 (4) , pp. 717-729.

Selman, Lucy E., Farnell, Damian J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, Mirella, Goss, Silvia, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Seddon, Kathy, Machin, Linda, Mayland, Catriona R., Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Levels of grief, support needs and risk factors among people bereaved during the Covid-19 pandemic: baseline results from a longitudinal UK online survey. Presented at: Palliative Care Congress 2022, Telford, Englad, 24-25 March 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A1. 10.1136/spcare-2022-SCPSC.2

Sutton, Eileen, Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Selman, Lucy 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. British Medical Journal. , vol.12 BMJ Publishing Group,

Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, Eileen, Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Carduff, Emma, Farnell, Damian JJ ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annemarie, Byrne, Anthony, Phillips, Rhiannon, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. ‘There is nowhere to place the anger’: accounts of bereavement experiences during the COVID-19 pandemic. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A10-A11. 10.1136/spcare-2021-MCRC.25

Goss, S., Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, E., Farnell, D. J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Penny, A., Nelson, A., Byrne, A., Selman, L. and Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023 2022. Parents’ accounts of the grief experiences and support needs of children and young people bereaved during the COVID-19 pandemic: results from a UK-wide online survey. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A6-A7. 10.1136/spcare-2021-MCRC.15

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Selman, Lucy E. 2022. Bereavement during the COVID-19 pandemic in the UK: What do we know so far? Bereavement Journal of Grief and Responses to Death 1 , 18. 10.54210/bj.2022.18

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.

Hudson, Briony, Selman, L., Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Precious, G., Vine, M., Roberts, I., Penny, A. and Royston, S. 2022. Experiences of bereavement across the UK. What are the challenges and what might the future look like – findings From the UK commission on bereavement. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 SAGE Publications, 10.1177/02692163221093145

Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 SAGE Publications, 10.1177/02692163221093145

Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023, Goss, S., Farnell, D. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, A., Barawi, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425, Seddon, K., Machin, L., Sutton, E., Roulston, A., Finucane, A., Penny, A., Smith, K.V., Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860 and Selman, S.E. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10) , pp. 1985-1997. 10.1177/02692163211043372

Phillips, Rhiannon, Taiyari, Khadijeh, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Cannings-John, Rebecca ORCID: https://orcid.org/0000-0001-5235-6517, Williams, Dentiza, Peddle, Sarah, Campbell, Susan, Hughes, Kathryn ORCID: https://orcid.org/0000-0002-8099-066X, Gillespie, David ORCID: https://orcid.org/0000-0002-6934-2928, Sellars, Paul, Pell, Bethan ORCID: https://orcid.org/0000-0002-0786-6339, Ashfield-Watt, Pauline, Akbari, Ashley, Heidi, Catherine Heidi, Perham, Nick, Joseph-Williams, Natalie ORCID: https://orcid.org/0000-0002-8944-2969, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Blaxland, James, Wood, Fiona ORCID: https://orcid.org/0000-0001-7397-4074, Poortinga, Wouter ORCID: https://orcid.org/0000-0002-6926-8545, Wahl-Jorgensen, Karin ORCID: https://orcid.org/0000-0002-8461-5795, James, Delyth H., Crone, Diane, Thomas-Jones, Rachel ORCID: https://orcid.org/0000-0001-7716-2786 and Hallingberg, Brit 2021. Cohort profile: The UK COVID-19 Public Experiences (COPE) prospective longitudinal mixed-methods study of health and well-being during the SARSCoV2 coronavirus pandemic. PLoS ONE 16 (10) , e0258484. 10.1371/journal.pone.0258484

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Selman, Lucy, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Goss, Silvia, Sutton, Eileen, Seddon, Kathy, Machin, Linda, Penny, Alison, Roulston, Audrey, Carduff, Emma, Finucane, Anne, Smith, Kirsten V, Torrens Burton, Anna, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Mayland, Catriona, Wakefield, Donna, Johnston, Bridget and Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021. BMJ Supportive and Palliative Care. , vol.11 (Supple) BMJ Publishing Group, A3. 10.1136/spcare-2021-PCC.6

Ray, Isabelle, Green, John, Goodfellow, Rhian and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2020. The role of educational supervisors and their feedback in an undergraduate medical curriculum. The British Student Doctor Journal 4 (3) , pp. 31-33. 10.18573/bsdj.200

Desai, Ami, Green, John, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Goodfellow, Rhian 2020. 'Can you watch me please?' An evaluation of supervised learning events for medical students. The British Student Doctor Journal 4 (3) , pp. 16-18. 10.18573/bsdj.211

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Mann, Mala, Ferreira Semedo, Lenira, Chao, Davina, Selman, Lucy E. and Byrne, Anthony 2020. What elements of a systems approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19. Palliative Medicine 34 (9) , pp. 1165-1181. 10.1177/0269216320946273

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Ferreira Semedo, Lenira, Fitzgibbon, Jim, Pickett, Sara, Scott, Hannah, Seddon, Kathy, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34 (7) , pp. 871-888. 10.1177/0269216320920533

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Pickett, Sara, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19 , 29. 10.1186/s12904-020-0532-4

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2020. Bereavement outcomes study: Summary reports of consensus exercises. [Project Report]. Marie Curie Research Centre.

Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Bowyer, Anna, Taylor, Sophia ORCID: https://orcid.org/0000-0002-3116-5647, Thomas, Kristen, Newman, Alisha ORCID: https://orcid.org/0000-0003-0401-1412, Prout, Hayley Christine ORCID: https://orcid.org/0000-0003-0170-7027, Byrne, Anthony, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9 (2) , pp. 219-224. 10.1136/bmjspcare-2015-000889

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley Christine ORCID: https://orcid.org/0000-0003-0170-7027, Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony, Edwards, Michelle, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9 , e14. 10.1136/bmjspcare-2015-000892

Seddon, Kathy, Fitzgibbon, Jim, Harrington, Barbara, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Pickett, Sara, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8 (3) , pp. 374-375. 10.1136/bmjspcare-2018-mariecurie.40

Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Scott, Hannah, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Pickett, Sara, Byrne, Anthony, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8 (3) , 371. 10.1136/bmjspcare-2018-mariecurie.30

Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Scott, Hannah, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Fitzgibbon, Jim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Pickett, Sara, Seddon, Kathy, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8 (3) , pp. 380-381. 10.1136/bmjspcare-2018-mariecurie.54

Prout, Hayley C. ORCID: https://orcid.org/0000-0003-0170-7027, Barham, Allan, Bongard, Emily, Tudor-Edwards, Rhiannon, Griffiths, Gareth, Hamilton, Willie, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Hood, Kerry ORCID: https://orcid.org/0000-0002-5268-8631, Hurt, Chris N. ORCID: https://orcid.org/0000-0003-1206-8355, Nelson, Rosie ORCID: https://orcid.org/0000-0002-6075-8425, Porter, Catherine ORCID: https://orcid.org/0000-0003-1851-0677, Roberts, Kirsty, Rogers, Trevor, Thomas-Jones, Emma ORCID: https://orcid.org/0000-0001-7716-2786, Tod, Angela, Yeo, Seow Tien, Neal, Richard D. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2018. Patient understanding and acceptability of an early lung cancer diagnosis trial: a qualitative study. Trials 19 , 419. 10.1186/s13063-018-2803-4

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Rees, Helen, Harris, Dylan and Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 2018. The challenge pathway: a mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (innovative practice). Dementia 17 (2) , pp. 252-257. 10.1177/1471301217729532

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Edwards, M, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moore, B and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39 (8) , pp. 1448-1464.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers. BMC Palliative Care 15 , 92. 10.1186/s12904-016-0165-9

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Edwards, Michelle, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moore, Barbara and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17 (1) , 329. 10.1186/s13063-016-1460-8

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Kelly, John, Griffiths, Gareth, Casbard, Angela C. ORCID: https://orcid.org/0000-0001-6241-3052 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. Why do patients decline surgical trials? Findings from a qualitative interview study embedded in the Cancer Research UK BOLERO trial (Bladder cancer: Open versus Lapararoscopic or RObotic cystectomy). Trials 17 , 35. 10.1186/s13063-016-1173-z

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Godwin, Jordan van, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. [Project Report].

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Hopewell Kelly, Noreen, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Cardiff: Marie Curie Palliative Care Research Centre , Cardiff University School of Medicine.

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, A., Edwards, M., Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, S., Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony, Edwards, Michelle, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Hopewell-Kelly, Noreen, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 , 117. 10.1136/bmjspcare-2014-000838.40

Bowyer, Anna, Finlay, Ilora Gillian, Byrne, Anthony, McCarthy, Jackie, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Snow, V. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. After iWantGreatCare: Service user feedback as a means of refining the iWantGreatCare questionnaire [Abstract]. BMJ Supportive & Palliative Care 4 (S1) , A47-A48. 10.1136/bmjspcare-2014-000654.133

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Hopewell-Kelly, Noreen, Stephens, K., Byrne, A. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. Engaging minority ethnic communities to improve access to palliative care: Barriers and strategies. Presented at: Marie Curie Annual Palliative Care Research Conference, London, 28 March 2014. BMJ Supportive and Palliative Care. BMJ, 114-(P026). 10.1136/bmjspcare-2014-000653.28

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2014. "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life. BMC Palliative Care 13 , p. 22. 10.1186/1472-684X-13-22

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Kelly, John, Neal, David, Dasgupta, Prokar, Basnett, Gillian, Huddart, Robert, Barham, Allan, Thompson, Colin, Casbard, Angela ORCID: https://orcid.org/0000-0001-6241-3052, Jundi, Hala, Griffiths, Gareth and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. ‘Once I knew there was a choice, I wanted to exercise that choice': using qualitative methods to understand why patients decline surgical trials. Trials 14 (S1) , P9 (2013). 10.1186/1745-6215-14-s1-p9

Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Fenlon, Debbie, Morris, Jenny, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Murray, Nick, Wheatley, Duncan, Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Griffiths, Gareth and Barrett-Lee, Peter ORCID: https://orcid.org/0000-0002-6246-7357 2013. QUALZICE: A QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates. Trials 14 (1) , 325. 10.1186/1745-6215-14-325

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Broadening access; an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: Marie Curie Annual Palliative Care Research Conference, London; UK, 28 March 2014. BMJ Supportive & Palliative Care. BMJ, p. 131. 10.1136/bmjspcare-2013-000453b.20

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care services by minority ethnic groups. Presented at: Marie Curie Annual Palliative Care Research Conference, London, UK, 28 March 2014.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. An evaluation of an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013.

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, 30 May - 2 June 2013. BMJ Supportive and Palliative Care. BMJ, p. 131. 10.1136/bmjspcare-2013-000453b.19

Nawaz, S., Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Byrne, A., Stephens, K. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Improving access to palliative care services for minority ethnic communities in Wales. Presented at: All Wales Palliative Care Conference, Powys; UK, 10 - 11 October 2013.

Edwards, Michelle, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Griffiths, Gareth O., Byrne, A., Moore, Bethan, Ahmed, S. and Noble, Simon Ian Robert ORCID: https://orcid.org/0000-0001-5425-2383 2012. 110 Motivations of palliative lung cancer patients to participate in a non-placebo clinical trial (QualFRAG). Lung Cancer 75 (s1) , s36.

Elliott, Eva ORCID: https://orcid.org/0000-0003-1583-2603, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Rothwell, Heather, Shepherd, Michael and Williams, Gareth 2010. The impact of the economic downturn on health in Wales: a review and case study. [Working Paper]. School of Social Sciences Working Papers Series, vol. 134. Cardiff: Cardiff University.

Elliott, Eva ORCID: https://orcid.org/0000-0003-1583-2603, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Shepherd, Michael Allen, Rothwell, Heather Ann and Williams, Gareth Howard 2010. The impact of the recession on health: perspectives. Presented at: 18th UKPHA Annual Public Health Forum, Bournemouth, UK, 24- 25 March 2010.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2010. Contested knowledge in the assessment of public health risks: A case study of the Nant-y-Gwyddon landfill site in the Rhondda valley, South Wales. PhD Thesis, Cardiff University.

Elliott, Eva ORCID: https://orcid.org/0000-0003-1583-2603, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Williams, Gareth Howard 2009. Contesting the science: public health knowledge and action in controversial land-use developments. Benett, Peter, Calman, Kenneth, Curtis, Sarah and Fischbacher-Smith, Denis, eds. Risk Communication and Public Health (2nd ed.), Oxford: Oxford University Press, pp. 181-196. (10.1093/acprof:oso/9780199562848.003.12)

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Elliott, Eva ORCID: https://orcid.org/0000-0003-1583-2603 and Williams, Gareth Howard 2009. Contesting the science: public health knowledge in an environmental protest. Presented at: BSA Medical Sociology Group 41st Annual Conference, Manchester, UK, 4 September 2009.

Elliott, Eva ORCID: https://orcid.org/0000-0003-1583-2603, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Williams, Gareth Howard 2009. Contesting the science: public health knowledge and action in controversial land-use development. Presented at: 104th American Sociological Association conference, San Fransisco. USA, 8 - 11 August 2009.

Rothwell, Heather, Murphy, Simon ORCID: https://orcid.org/0000-0003-3589-3681, MacDonald, Sarah ORCID: https://orcid.org/0000-0002-8245-2347 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2007. Exploring responsibility for health in families: analysing social relationships through a focus group study. Presented at: Society for Social Medicine, 51st Annual Scientific Meeting, Cork, Ireland, 12-14 September 2007.

Murphy, Simon ORCID: https://orcid.org/0000-0003-3589-3681, MacDonald, Sarah ORCID: https://orcid.org/0000-0002-8245-2347, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Rothwell, Heather 2007. "Nanny knows best": Individual and state responsibilities for health - a qualitative study using focus groups with the general public. Presented at: 19th IUHPE Conference on Health Promotion and Education, Vancouver, BC, Canada, 11-15 June 2007.

Murphy, Simon, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, MacDonald, Sarah ORCID: https://orcid.org/0000-0002-8245-2347 and Rothwell, Heather 2006. An examination of perceptions of roles and responsibilities for health amongst the general public. [Working Paper]. School of Social Sciences Working Papers Series, vol. 76. Cardiff: Cardiff University.

MacDonald, Sarah ORCID: https://orcid.org/0000-0002-8245-2347, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Rothwell, Heather and Murphy, Simon 2006. Organisational roles and responsibilities for health: interviews with representatives from the statutory and non-statutory sectors. [Working Paper]. School of Social Sciences Working Papers Series, vol. 77. Cardiff: Cardiff University.

Rothwell, Heather, Murphy, Simon, MacDonald, Sarah ORCID: https://orcid.org/0000-0002-8245-2347 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2006. Organisational roles and responsibilities for health: a pilot survey of businesses, primary and secondary schools and local government. [Working Paper]. School of Social Sciences Working Papers Series, vol. 78. Cardiff: Cardiff University.

Murphy, Simon ORCID: https://orcid.org/0000-0003-3589-3681, MacDonald, Sarah ORCID: https://orcid.org/0000-0002-8245-2347, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Rothwell, Heather 2006. "Nanny knows best": Individual and state responsibilities for health - a qualitative study using focus groups with the general public. Presented at: AWARD Building R&D in Health and Social Care in Wales, Swansea University, Swansea, UK, 21 June 2006.