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Number of items: 20.

Baddeley, Elin, Font, Carme, Mahé, Isabelle, Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Lifford, Kate J. ORCID: https://orcid.org/0000-0002-9782-2080, Arfuch, Victoria Mailen, Coma-Auli, Nuri, Søgaard, Mette, Enggaard, Helle, Helfer, Hélène, Mohammed, Nassima Si, Seddon, Kathy, Pearson, Mark, Mooijaart, Simone P., Szmit, Sebastian, Klok, F.A., Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 and Højen, Anette Arbjerg 2025. "Who am I to say that I'm not going to take it": patient perspectives on decisions about antithrombotic therapy in the context of advanced cancer. Thrombosis Research: Vascular Obstruction, Hemorrhage and Hemostasis 253 , 109399. 10.1016/j.thromres.2025.109399
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Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Seddon, Kathy, Baddeley, Elin, Ording, Anne Gulbech, Pearson, Mark, Mahe, Isabelle, Mooijaart, Simon, Klok, Frederikus A. and Noble, Simon I.R. ORCID: https://orcid.org/0000-0001-5425-2383 2025. Involving patients and the public in cancer associated thrombosis research: a strategy for success. Thrombosis Update 18 , 100196. 10.1016/j.tru.2024.100196
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Staffurth, John N. ORCID: https://orcid.org/0000-0002-7834-3172, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Ahmedzai, Sam, Andreyev, H. Jervoise, Campbell, Susan, Farnell, Damian J. J. ORCID: https://orcid.org/0000-0003-0662-1927, Ferguson, Catherine, Green, John, Muls, Ann, O'Shea, Raymond, Pickett, Sara, Smith, Lesley, Taylor, Sophia and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2025. The impact of specialised gastroenterology services for pelvic radiation disease (PRD): Results from the prospective multi-centre EAGLE study. PLoS ONE 20 (1) , e0303356. 10.1371/journal.pone.0303356
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Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Retzer, Ameeta, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Katthy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Calvert, Melanie and Byrne, Anthony 2025. Wellbeing and coping: Key aspects of unmet need of people living with glioma. Neuro Oncology Practice , npae127. 10.1093/nop/npae127
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Retzer, Ameeta, Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Scott, Hannah, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Kearns, Pamela, Rivera, Samantha Cruz, Dirven, Linda, Calvert, Melanie and Byrne, Anthony 2023. Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study. Neuro-Oncology Advances 5 (1) , vdad096. 10.1093/noajnl/vdad096
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Baddeley, Elin, Sivell, S., Retzer, A., Nelson, A., Bulbeck, H., Seddon, K., Grant, R., Adams, R., Watts, C., Aiyegbusi, O., Kearns, P., Dirven, L., Calvert, M. and Byrne, A. 2023. Understanding the holistic needs of people living with glioma and their caregivers: A thematic analysis of the semi-structured interviews for the COBRA study. Presented at: European Association of Neuro-Oncology (EANO), Rotterdam, 21-24 September 2023. Neuro-Oncology. , vol.25 (S2) 10.1093/neuonc/noad137.194

Goedegebuur, J., Abbel, D., Accassat, S., Achterberg, W.P., Akbari, A., Baddeley, Elin, Bax, J.J., Becker, B., Bergmeijer, D., Bertoletti, L., Blom, J.W., Calvetti, A., Cannegieter, S.G., Castro, L., Chavannes, C.H., Coma-Auli, N.R.N., Couffignal, C., Edwards, Adrian ORCID: https://orcid.org/0000-0002-6228-4446, Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Enggaard, H.R.N., Font, C., Gava, A., Geersing, G.J., Geijteman, E.C.T, Greenley, S., Gregory, Clive ORCID: https://orcid.org/0000-0003-4876-3982, Gussekloo, J., Hoffmann, I., Højen, A.A., Hout, van den W.B., Huisman, M.V., Jacobsen, S., Jagosh, J., Johnson, M.J., Jørgensen, L., Juffermans, C.C.M., Kempers, E.K., Konstantinides, S., Kroder, A.F., Kruip, M.J.H.A, Lafaie, L., Larsen, T.B., Lifford, K. ORCID: https://orcid.org/0000-0002-9782-2080, Linden, van der Y.M., Mahé, I., Maiorana, L., Maraveyas, A., Martens, E.S.L., Mayeur, D., Mens van, T.E., Mohr, K., Mooijaart, S.P., Murtagh, F.E.M, Nelson, A., Nielsen, P.B., Ording, A.G., Ørskov, M., Pearson, M., Poenou, G., Portielje, J.E.A., Raczkiewicz, D., Rasmussen, K., Trinks-Roerdink, E., Schippers, I., Seddon, K., Sexton, Keith, Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860, Skjøth, F., Søgaard, M., Szmit, S., Trompet, S., Vassal, P., Visser, C., Vliet, van L.M., Wilson, E., Klok, F.A. and Noble, S.I.R. ORCID: https://orcid.org/0000-0001-5425-2383 2023. Towards optimal use of antithrombotic therapy of people with cancer at the end of life: a research protocol for the development and implementation of the SERENITY shared decision support tool. Thrombosis Research 228 , pp. 54-60. 10.1016/j.thromres.2023.05.008
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Bravington, Alison, Obita, George, Baddeley, Elin, Johnson, Miriam J., Murtagh, Fliss E. M., Currow, David C., Boland, Elaine G., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Seddon, Kathy, Oliver, Alfred, Noble, Simon I. R. ORCID: https://orcid.org/0000-0001-5425-2383 and Boland, Jason W. 2023. Development of a Core Outcome Set for the research and assessment of inoperable malignant bowel obstruction. PLoS ONE 18 (8) , e0289501. 10.1371/journal.pone.0289501
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Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Griffiths, Lowri, Makuta, Gladys and Byrne, Anthony 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A6-A7. 10.1136/spcare-2023-MCRC.15

Bravington, Alison, Obita, George, Baddeley, Elin, Johnson, Miriam J., Murtagh, Fliss E M., Currow, David C., Boland, Elaine G., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Seddon, Kathy, Oliver, Alfred, Noble, Simon I. R. ORCID: https://orcid.org/0000-0001-5425-2383 and Boland, Jason W. 2022. The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: a systematic review. Palliative Medicine 36 (9) , pp. 1336-1350. 10.1177/02692163221122352
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Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference, Prague, Czech Republic, 19-22 October 2022.

Retzer, Ameeta, Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Bulbeck, Helen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, Melanie, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Cruz Rivera, Samantha, Kearns, Pamela, Dirven, Linda and Byrne, Anthony 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data. Presented at: BNOS 2022, Liverpool, 22-24 June 2022. Neuro-Oncology. , vol.24 Oxford University Press, 10.1093/neuonc/noac200.019

Baddeley, E., Retzer, A., Seddon, K., Bulbeck, H., Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, M., Grants, R., Adams, R., Watts, C., Aiyegbusi, O.L., Rivera, S.C., Kearns, P., Dirven, L. and Byrne, A. 2022. The experiences of people with glioma and their caregivers: Living with uncertainty and long-term consequences (COBra Study). Presented at: 17th World Congress of the EAPC 2021, Online, 6-8 October 2021. Neuro-Oncology. , vol.24 (Supp.4) Oxford University Press, iv2. 10.1093/neuonc/noac200.007

Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Scott, Hannah, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Kearns, Pamela, Rivera, Samantha Cruz, Dirven, Linda, Baddeley, Elin, Calver, Melani and Byrne, Anthony 2022. Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study. BMJ Open 12 , 057712. 10.1136/bmjopen-2021-057712
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Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study. Presented at: European Association of Neuro-Oncology (EANO), Vienna, Austria, 15-18 September 2022. Neuro-Oncology. , vol.24 (2) Oxford Academic, ii47. 10.1093/neuonc/noac174.162

Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Griffiths, Lowri, Makuta, Gladys and Byrne, Anthony 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. [Project Report]. NHS Wales and Marie Curie Palliative Care Research Centre.
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Baddeley, Elin, Mann, Mala, Bravington, Alison, Johnson, Miriam J., Currow, David, Murtagh, Fliss E.M., Boland, Elaine G., Obita, George, Oliver, Alfred, Seddon, Kathy, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Boland, Jason W. and Noble, Simon I.R. ORCID: https://orcid.org/0000-0001-5425-2383 2022. Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliative Medicine 36 (6) , pp. 895-911. 10.1177/02692163221081331
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Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Bulbeck, Helen, Retzer, Ameeta, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, Mia, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Rivera, Samantha Cruz, Kearns, Pamela, Dirven, Linda and Byrne, Anthony 2022. Evaluation of patient and public involvement in the development of a patient reported outcome set in brain tumour trials (COBra Study). Presented at: National PROMs Annual Research Conference, National, 14-15 June 2022.

Baddeley, Elin, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Newman, Alisha, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Pease, Nikki, Nelson, Rosie and Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 2021. A mixed-methods study to evaluate a patient-designed tool to reduce harm from cancer-associated thrombosis: The EMPOWER study. Research and Practice in Thrombosis and Haemostasis 5 (5) , e12545. 10.1002/rth2.12545
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Baddeley, Elin, Bravington, Alison, Johnson, Miriam, Currow, David C, Murtagh, Fliss EM, Boland, Elaine, Obita, George, Nelson, Annmarie, Seddon, Kathy, Oliver, Alfred, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 and Boland, Jason 2020. Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study. BMJ Open 10 (6) , e039154. 10.1136/bmjopen-2020-039154
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This list was generated on Wed Jul 16 08:47:38 2025 BST.


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