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Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Retzer, Ameeta, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Calvert, Melanie and Byrne, Anthony 2025. Wellbeing and coping: Key aspects of unmet need of people living with glioma. Neuro Oncology Practice 12 (3) , pp. 413-425. 10.1093/nop/npae127

Baddeley, Elin, Mann, Mala, Bravington, Alison, Johnson, Miriam J., Currow, David, Murtagh, Fliss E.M., Boland, Elaine G., Obita, George, Oliver, Alfred, Seddon, Kathy, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Boland, Jason W. and Noble, Simon I.R. ORCID: https://orcid.org/0000-0001-5425-2383 2022. Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliative Medicine 36 (6) , pp. 895-911. 10.1177/02692163221081331

Berman, R., Laird, B.J.A., Minton, O., Monnery, D., Ahamed, A., Boland, E., Droney, J., Vidrine, J., Leach, C., Scotte, F., Lustberg, M.B., Lacey, J., Chan, R., Duffy, T. and Noble, S. ORCID: https://orcid.org/0000-0001-5425-2383 2023. The rise of supportive oncology: a revolution in cancer care. Clinical Oncology 35 (4) , pp. 213-215. 10.1016/j.clon.2023.01.015

Evans, Bridie Angela, Brown, Alan, Fegan, Greg, Ford, Simon, Guy, Katy, Jones, Jenna, Jones, Sian, Keen, Leigh, Khanom, Ashrafunnesa, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Pallister, Ian, Rees, Nigel, Russel, Ian T, Seagrove, Anne C, Watkins, Alan and Snooks, Helen 2019. Is fascia iliaca compartment block administered by paramedics for suspected hip fracture acceptable to patients? BMJ Open 9 (12) , e033398. 10.1136/bmjopen-2019-033398

Fiddimore, Emma, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2023. 'I don't want to hear statistics, I want real life stories': systematic review and thematic synthesis of patient and caregiver experiences of Proton Beam Therapy. Journal of Psychosocial Oncology 41 (4) , pp. 434-456. 10.1080/07347332.2022.2136997

Goedegebuur, J., Abbel, D., Accassat, S., Achterberg, W.P., Akbari, A., Baddeley, Elin, Bax, J.J., Becker, B., Bergmeijer, D., Bertoletti, L., Blom, J.W., Calvetti, A., Cannegieter, S.G., Castro, L., Chavannes, C.H., Coma-Auli, N.R.N., Couffignal, C., Edwards, Adrian ORCID: https://orcid.org/0000-0002-6228-4446, Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Enggaard, H.R.N., Font, C., Gava, A., Geersing, G.J., Geijteman, E.C.T, Greenley, S., Gregory, Clive ORCID: https://orcid.org/0000-0003-4876-3982, Gussekloo, J., Hoffmann, I., Højen, A.A., Hout, van den W.B., Huisman, M.V., Jacobsen, S., Jagosh, J., Johnson, M.J., Jørgensen, L., Juffermans, C.C.M., Kempers, E.K., Konstantinides, S., Kroder, A.F., Kruip, M.J.H.A, Lafaie, L., Larsen, T.B., Lifford, K. ORCID: https://orcid.org/0000-0002-9782-2080, Linden, van der Y.M., Mahé, I., Maiorana, L., Maraveyas, A., Martens, E.S.L., Mayeur, D., Mens van, T.E., Mohr, K., Mooijaart, S.P., Murtagh, F.E.M, Nelson, A., Nielsen, P.B., Ording, A.G., Ørskov, M., Pearson, M., Poenou, G., Portielje, J.E.A., Raczkiewicz, D., Rasmussen, K., Trinks-Roerdink, E., Schippers, I., Seddon, K., Sexton, Keith, Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860, Skjøth, F., Søgaard, M., Szmit, S., Trompet, S., Vassal, P., Visser, C., Vliet, van L.M., Wilson, E., Klok, F.A. and Noble, S.I.R. ORCID: https://orcid.org/0000-0001-5425-2383 2023. Towards optimal use of antithrombotic therapy of people with cancer at the end of life: a research protocol for the development and implementation of the SERENITY shared decision support tool. Thrombosis Research 228 , pp. 54-60. 10.1016/j.thromres.2023.05.008

Graham-Wisener, L, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Islam, Ishrat ORCID: https://orcid.org/0000-0003-1395-8173, Harrison, C, Geddis, J and Berry, E 2022. Understanding public attitudes to death talk and advance care planning in Northern Ireland using health behaviour change theory: a qualitative study. BMC Public Health 22 (906) 10.1186/s12889-022-13319-1

Haire, Ellen, Mann, Mala, Yeoman, Andrew, Atkinson, Clea, Wright, Mark and Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383 2024. Supportive and palliative care needs in advanced non-malignant liver disease: systematic review. BMJ Supportive & Palliative Care 10.1136/spcare-2024-004785

Harrewijn, Anita, Cardinale, Elise M., Groenewold, Nynke A., Bas-Hoogendam, Janna Marie, Aghajani, Moji, Hilbert, Kevin, Cardoner, Narcis, Porta-Casteràs, Daniel, Gosnell, Savannah, Salas, Ramiro, Jackowski, Andrea P., Pan, Pedro M., Salum, Giovanni A., Blair, Karina S., Blair, James R., Hammoud, Mira Z., Milad, Mohammed R., Burkhouse, Katie L., Phan, K. Luan, Schroeder, Heidi K., Strawn, Jeffrey R., Beesdo-Baum, Katja, Jahanshad, Neda, Thomopoulos, Sophia I., Buckner, Randy, Nielsen, Jared A., Smoller, Jordan W., Soares, Jair C., Mwangi, Benson, Wu, Mon-Ju, Zunta-Soares, Giovana B., Assaf, Michal, Diefenbach, Gretchen J., Brambilla, Paolo, Maggioni, Eleonora, Hofmann, David, Straube, Thomas, Andreescu, Carmen, Berta, Rachel, Tamburo, Erica, Price, Rebecca B., Manfro, Gisele G., Agosta, Federica, Canu, Elisa, Cividini, Camilla, Filippi, Massimo, Kosti?, Milutin, Munjiza Jovanovic, Ana, Alberton, Bianca A. V., Benson, Brenda, Freitag, Gabrielle F., Filippi, Courtney A., Gold, Andrea L., Leibenluft, Ellen, Ringlein, Grace V., Werwath, Kathryn E., Zwiebel, Hannah, Zugman, André, Grabe, Hans J., Van der Auwera, Sandra, Wittfeld, Katharina, Völzke, Henry, Bülow, Robin, Balderston, Nicholas L., Ernst, Monique, Grillon, Christian, Mujica-Parodi, Lilianne R., van Nieuwenhuizen, Helena, Critchley, Hugo D., Makovac, Elena, Mancini, Matteo, Meeten, Frances, Ottaviani, Cristina, Ball, Tali M., Fonzo, Gregory A., Paulus, Martin P., Stein, Murray B., Gur, Raquel E., Gur, Ruben C., Kaczkurkin, Antonia N., Larsen, Bart, Satterthwaite, Theodore D., Harper, Jennifer, Myers, Michael, Perino, Michael T., Sylvester, Chad M., Yu, Qiongru, Lueken, Ulrike, Veltman, Dick J., Thompson, Paul M., Stein, Dan J., Van der Wee, Nic J. A., Winkler, Anderson M. and Pine, Daniel S. 2021. Cortical and subcortical brain structure in generalized anxiety disorder: findings from 28 research sites in the ENIGMA-Anxiety Working Group. Translational Psychiatry 11 (1) , 502. 10.1038/s41398-021-01622-1

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2024. A spotlight on children and young people - and remembering Colin Murray Parkes. Bereavement Journal of Grief and Responses to Death 3 , pp. 1-3. 10.54210/bj.2024.1140

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, Lucy 2022. Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: Qualitative findings from a national survey. BMC Palliative Care 21 , 177. 10.1186/s12904-022-01066-4

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. What difference does a year make? Looking back and ahead in Bereavement-Volume 2. Bereavement: Journal of Grief and Responses to Death 2 10.54210/bj.2023.1116

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Pearce, Caroline 2022. We wept and we waited - but what can we learn from the week we mourned the Queen? Bereavement : Journal of Grief Responses to Death 1 (2022) , pp. 1-4.

Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Goss, Silvia, Hope, Isabel and Mann, Mala 2024. The information and communication needs of patients with advanced incurable cancer: a rapid review. Patient Education and Counseling 131 , 108559. 10.1016/j.pec.2024.108559

Hussain, Jamilla A, White, Ian R, Johnson, Miriam J, Byrne, Anthony, Preston, Nancy J, Haines, Andy, Seddon, Kathy and Peters, Tim J 2022. Development of guidelines to reduce, handle and report missing data in palliative care trials: A multi-stakeholder modified nominal group technique. Palliative Medicine 36 (1) , pp. 59-70. 10.1177/02692163211065597

Mørkved, Amalie Lambert, Søgaard, Mette, Skjøth, Flemming, Ording, Anne Gulbech, Jensen, Martin, Larsen, Torben Bjerregaard, Jakobsen, Erik, Højen, Anette Arbjerg, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Meldgaard, Peldgaard, Petersen, Rene Horsleben and Christensen, Thomas Decker 2024. Risk and timing of venous thromboembolism after surgery for lung cancer: a nationwide cohort study. The Annals of Thoracic Surgery 117 (2) , pp. 289-296. 10.1016/j.athoracsur.2023.10.015

Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Fitzgibbon, Jim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 10.54210/bj.2022.1078

Selman, Lucy E., Sutton, Eileen, Medeiros Mirra, Renata, Stone, Tracey, Gilbert, Emma, Rolston, Yancie, Murray, Karl, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, Alison, Mayland, Katrina R., Wakefield, Donna, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. ‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access tobereavement support: Findings from a mixed methods study. Palliative Medicine 37 (4) , pp. 586-601. 10.1177/02692163221133665

Smith, Pamela, Quinn-Scoggins, Harriet ORCID: https://orcid.org/0000-0002-6136-070X, Murray, Rachael Ll, McCutchan, Grace ORCID: https://orcid.org/0000-0002-8079-2540, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Moore, Graham ORCID: https://orcid.org/0000-0002-6136-3978, Callister, Matthew, Tong, Hoang and Brain, Kate ORCID: https://orcid.org/0000-0001-9296-9748 2024. Barriers and facilitators to engaging in smoking cessation support among lung screening participants. Nicotine & Tobacco Research 26 (7) , pp. 870-877. 10.1093/ntr/ntad245

Touray, Morro M. L., Cohen, David R., Williams, Simon Robert Pask, Alam, Mohammed Fasihul, Groves, Sam, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 and Gage, Heather 2022. Overweight/obesity and time preference: evidence from a survey among adults in the UK. Obesity Facts 15 (3) , 428–441. 10.1159/000522651

Book Section

Mann, Mala and Bradbury, Kate 2022. Promotion and preservation. Jewell, Sarah T. and Foster, Margaret J., eds. Piecing Together Systematic Reviews and Other Evidence Syntheses: A Guide for Librarians, Medical Library Association Books Series, London, UK: Rowman & Littlefield, pp. 251-265.

Conference or Workshop Item

Baddeley, Elin, Sivell, S., Retzer, A., Nelson, A., Bulbeck, H., Seddon, K., Grant, R., Adams, R., Watts, C., Aiyegbusi, O., Kearns, P., Dirven, L., Calvert, M. and Byrne, A. 2023. Understanding the holistic needs of people living with glioma and their caregivers: A thematic analysis of the semi-structured interviews for the COBRA study. Presented at: European Association of Neuro-Oncology (EANO), Rotterdam, 21-24 September 2023. Neuro-Oncology. , vol.25 (S2) 10.1093/neuonc/noad137.194

Baddeley, E., Retzer, A., Seddon, K., Bulbeck, H., Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, M., Grants, R., Adams, R., Watts, C., Aiyegbusi, O.L., Rivera, S.C., Kearns, P., Dirven, L. and Byrne, A. 2022. The experiences of people with glioma and their caregivers: Living with uncertainty and long-term consequences (COBra Study). Presented at: 17th World Congress of the EAPC 2021, Online, 6-8 October 2021. Neuro-Oncology. , vol.24 (Supp.4) Oxford University Press, iv2. 10.1093/neuonc/noac200.007

Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study. Presented at: European Association of Neuro-Oncology (EANO), Vienna, Austria, 15-18 September 2022. Neuro-Oncology. , vol.24 (2) Oxford Academic, ii47. 10.1093/neuonc/noac174.162

Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference, Prague, Czech Republic, 19-22 October 2022.

Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Bulbeck, Helen, Retzer, Ameeta, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, Mia, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Rivera, Samantha Cruz, Kearns, Pamela, Dirven, Linda and Byrne, Anthony 2022. Evaluation of patient and public involvement in the development of a patient reported outcome set in brain tumour trials (COBra Study). Presented at: National PROMs Annual Research Conference, National, 14-15 June 2022.

Doyle, Christopher, Mann, Mala, Byrne, Anthony and Sui, Jessica 2024. Most effective treatment for early haemostasis and preventing re-bleeding in cancer patients with upper GI bleeds? Presented at: 13th World Research Congress of the European Association for Palliative Care, 16-18 May 2024, Barcelona, Spain. Palliative Medicine. , vol.38 (1 (Sup) pp. 1-280. 10.1177/02692163241242338

Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Griffiths, Lowri, Makuta, Gladys and Byrne, Anthony 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A6-A7. 10.1136/spcare-2023-MCRC.15

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy E. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 BMJ Publishing Group, A6. 10.1136/spcare-2023-MCRC.14

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, E., Farnell, D. J., Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Selman, L 2022. The grief and support needs of children and young people bereaved during the COVID-19 Pandemic: parental views from a UK national survey. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Hendry, Annie, Poolman, Marlise, Roberts, Jessica Louise, Wilkinson, Clare, Hiscock, Julia and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2020. Feasibility and acceptability of carer administered subcutaneous medications in the last days of life: qualitative findings from the CARiAD study. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. Abstracts from the 11th EAPC World Research Congress Online. Palliative Medicine. SAGE Publications, 10.1177/2F0269216320958098

Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Mann, Mala, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2023. A rapid realist review: how shared decision-making approaches and patient aids influence treatment decisions for patients with advanced (non-curative) cancer? Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. 10.1136/spcare-2023-MCRC.25

Hudson, Briony, Selman, L., Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Precious, G., Vine, M., Roberts, I., Penny, A. and Royston, S. 2022. Experiences of bereavement across the UK. What are the challenges and what might the future look like – findings From the UK commission on bereavement. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 SAGE Publications, 10.1177/02692163221093145

Mann, Mala, Cordiner, Rhiannon and Byrne, Anthony 2023. What competency frameworks are available to promote a consistent education framework for the palliative and end of life care workforce in Wales? A rapid evidence map. Presented at: The Marie Curie Research Conference, Virtual, 06-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 BMJ Publishing Group, A11-A12. 10.1136/spcare-2023-MCRC.27

Mann, Mala, Cordiner, Rhiannon and Byrne, Anthony 2024. Availability of competency frameworks palliative and end of life care (PEOLC) education: A Rapid Evidence Map. Presented at: The 13th World Research Congress of the European Association for Palliative Care, Barcelona, Spain, 16-18 May 2024. Palliative Medicine. , vol.38 (1) SAGE Publications, 10.1177/02692163241242338

Mann, Mala, Hamilton, Timothy and Byrne, Anthony 2024. Are holistic needs assessments (HNA) being consistently implemented in adult cancer clinical practice? Presented at: The Marie Curie Research Conference 2024, Online, 5-9 February 2024. BMJ Supportive & Palliative Care. , vol.14 (A26) BMJ Publishing Group, 10.1136/spcare-2024-MCR.60

Mann, Mala, Woodward, Amanda and Byrne, Anthony 2020. Partnership and collaboration in action: Palliative Care Evidence Review Service. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. Abstracts from the 11th EAPC World Research Congress Online, 7th – 9th October 2020. Palliative Medicine. , vol.34 SAGE Publications, 10.1177/0269216320958098

Mazzaschi, Francesca, Barawi, Kali, Torren-Burton, Anna, Sutton, Eileen, Wakefield, Donna, Gilbert, Emma, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Grieving during COVID-19: exploring the lived experiences of people bereaved during the first two waves of the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A%. 10.1136/spcare-2023-MCRC.11

Mazzaschi, Francesca, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Brain, Katherine, Powell, James and Nelson, Annmarie 2020. What are the cognitive deficits observed in adults with brain cancer after receiving radiotherapy or combined chemo-radiotherapy? Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. Palliative Medicine. , vol.34 SAGE Publications, 10.1177/0269216320958098

Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Lester, Jason, Anagnostou, Despina and Sampson, Catherine 2019. Avoidable harm: making decisions about chemotherapy with advanced lung cancer patients. Presented at: NCRI 2019, Glasgow, UK, 3-5 November 2019.

Newman, Alisha ORCID: https://orcid.org/0000-0003-0401-1412, Seddon, Kathy, Hepburn, Julie, McAlister, Bob, Peddle, Sarah, Cleary, Kate and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2022. Developing tools to plan and track patient and public involvement (PPI) impact in research. Presented at: National PROMs Annual Research Conference., Online, 14-15 June 2022.

Retzer, Ameeta, Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Bulbeck, Helen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, Melanie, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Cruz Rivera, Samantha, Kearns, Pamela, Dirven, Linda and Byrne, Anthony 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data. Presented at: BNOS 2022, Liverpool, 22-24 June 2022. Neuro-Oncology. , vol.24 Oxford University Press, 10.1093/neuonc/noac200.019

Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Inequalities in access to bereavement support before and during COVID-19: Findings from voluntary and community sector bereavement services in the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. , vol.36 SAGE Publications, 10.1177/02692163221093145

Selman, L., Sutton, E., Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, A., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. OA05:02 The impact of COVID-19 on the provision of voluntary and community sector bereavement services: A cross-sectional survey from the UK. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care , vol.36 (1) SAGE Publications, 10.1177/02692163221093145

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Price, Delyth and Carson-Stevens, Andrew ORCID: https://orcid.org/0000-0002-7580-7699 2023. Understanding the experiences of providing end-of-life care in UK general practices; preliminary data from an independent evaluation of the daffodil standards. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 BMJ Supportive and Palliative Care: BMJ Publishing Group, A8-A9. 10.1136/spcare-2023-MCRC.20

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Price, Delyth and Carson-Stevens, Andrew ORCID: https://orcid.org/0000-0002-7580-7699 2023. The challenges and experiences of providing end-of-life care in primary care: online survey and semi-structured interviews with UK primary care professionals. Presented at: RCGP Annual Conference 2023, Glasgow, 19-20 October 2023. British Journal of General Practice. , vol.73 (Suppl) Royal College of General Practitioners, 10.3399/bjgp23X733833

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Price, Delyth, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Holness, Andrew, Holmes, Sarah, Millington-Sanders, Catherine, Skerry, Giles and Carson-Stevens, Andrew ORCID: https://orcid.org/0000-0002-7580-7699 2023. Protocol to evaluate the implementation of the royal college of general practitioners and Marie Curie Daffodil Standards in UK general practice. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive and Palliative Care. , vol.13 BMJ Publishing Group, A8. 10.1136/spcare-2023-MCRC.19

Sutton, Eileen, Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Penny, Alison, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 and Selman, Lucy 2022. The impact of the Covid-19 pandemic on bereavement support services in the UK: findings from a cross-sectional online survey and qualitative case studies. Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. British Medical Journal. , vol.12 BMJ Publishing Group,

Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Goss, Silvia, Sutton, E., Barawi, Kali, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Farnell, Damian J. ORCID: https://orcid.org/0000-0003-0662-1927, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Phillips, R., Selman, L. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. P02:57 “Empty and Lost”: The challenges of being bereaved during the COVID-19 Pandemic. Presented at: 12th World Research Congress of the European Association for Palliative Care, Online, 18-20 May 2022. Palliative Medicine. Abstracts from the 12th World Research Congress of the European Association for Palliative Care SAGE Publications, 10.1177/02692163221093145

Monograph

Chatland, Laura, Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda, Byrne, Anthony and Best, Sabine 2020. What is the evidence base for care models within care homes that improve the end of life for patients and their carers? A rapid review. [Documentation]. Cardiff: Cardiff University.

Cordiner, Rhiannon, Mann, Mala, Makuta, Gladys, Stewart, Rosemary and Byrne, Anthony 2021. What outcome domains are considered core to assessing the impact of adult specialist palliative care services in Wales? A rapid review. [Working Paper]. Cardiff: Cardiff University.

Cordiner, Rhiannon, Mann, Mala and Byrne, Anthony 2021. Palliative Care Evidence Review Service. What competency frameworks are available to promote a consistent education framework for palliative and end of life care workforce in Wales? A Rapid Evidence Map. [Working Paper]. Cardiff: Cardiff University.

Davies, James Michael Vernon, Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Evans, Alison and Byrne, Anthony 2019. What is the evidence base for the assessment and management of cancer cachexia in adults with incurable pancreatic cancer? A rapid review. [Documentation]. Cardiff: Cardiff University.

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Hopewell Kelly, Noreen, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Cardiff: Marie Curie Palliative Care Research Centre , Cardiff University School of Medicine.

Holland-Hart, Daniella ORCID: https://orcid.org/0000-0002-1127-5152, Goss, Silvia, Hope, Isabel and Mann, Mala 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review. Cardiff: Palliative Care Evidence Review Service. Available at: https://walescancerresearchcentre.org/wp-content/u...

Hussain, Jamilla, Peters, Tim J., Johnson, Miriam, Byrne, Anthony, Preston, Nancy, Haines, Andrew, Seddon, Kathy and White, Ian R. 2022. Missing data in palliative and end of life care trials. Guidance on how to reduce, handle and report incomplete data. [Technical Report]. Marie Curie Research. Available at: https://www.mariecurie.org.uk/globalassets/media/d...

Mann, Mala, Evans, Lowri, Williams, Lucy and Byrne, Anthony 2021. What is the evidence base for early palliative care integrated with acute oncology services in terms of oncology patient reported experience and outcomes, quality of life, and cost effectiveness? A rapid review. [Working Paper]. Cardiff: Cardiff University.

Mann, Mala, Gee, Peter and Byrne, Anthony 2016. What are best practice service models in rural areas for the delivery of end of life and palliative care? A rapid review. [Working Paper]. Cardiff: Cardiff University.

Mann, Mala, Gee, Peter, Morris, Andrew, Bayliss, Victoria, Allen, Caroline and Byrne, Anthony 2017. Does advance care planning alter management decisions made by healthcare professionals? [Working Paper]. Cardiff: Cardiff University.

Mann, Mala, Woodward, Amanda and Byrne, Anthony 2017. What outpatient models have proven efficacy for assessment and management of pelvic radiotherapy late effects? [Working Paper]. Cardiff: Cardiff University.

Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda and Byrne, Anthony 2018. What are the attitudes and perceptions of patients with pulmonary fibrosis and their carers towards use of oxygen therapy? A rapid review. [Project Report]. Cardiff: Cardiff University.

Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda, Evans, Alison and Byrne, Anthony 2019. What is the impact of reflexology on palliative and cancer patients with constipation? A rapid review. [Documentation]. Cardiff: Cardiff University.

Mann, Mala, Woodward, Amanda, Lewis, Mel and Byrne, Anthony 2018. What is the impact and effectiveness of the 7-day CNS service on palliative care patients and their families? A rapid review. [Working Paper]. Cardiff: Cardiff University.

Mann, Mala ORCID: https://orcid.org/0000-0002-2554-9265, Woodward, Amanda, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2018. What are the models and outcomes of Public and Patient Involvement (PPI) in cancer and palliative care research? A rapid review. [Project Report]. Cardiff: Cardiff University.

Pattern, Rosemary, Mann, Mala, Woodward, Amanda, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739 and Byrne, Anthony 2021. What are patient perspectives in atypical and idiopathic Parkinson’s disease of the benefits and timing of ACP and palliative care input? A rapid review. [Working Paper]. Cardiff: Cardiff University.

Prys Thomas, Owain, Mann, Mala, Fielding, Helen, Croft, Rebecca and Byrne, Anthony 2021. What is the evidence base for effectiveness and cost effectiveness of rapid response or enhanced response community palliative care service models? [Working Paper]. Cardiff: Cardiff University.